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Dec 31, 2019 · Hypertrophic Cardiomyopathy in Children in Congenital Heart Disease

Dearani

Hypertrophic Cardiomyopathy has an incidence of one in 500, but has a wide range of ages for when it presents itself. Although it generally presents in early adulthood, but it also presents in children. The incidence is one in 500

Medical treatment for hypertrophic cardiomyopathy begins with medication treatment prior to pursuing the very difficult surgical intervention.

The surgery, called a myectomy, involves opening up the aorta and can lead to possible damage while working with very small parts of the heart.

In the following video, Dr. Joseph Dearani,  details the symptoms that necessitate surgery such as shortness of breath or chest pain, while discussing the differences between adults and children.

Lastly, he discusses different questions that patients will have with this condition such as: The risk of surgical intervention? Will I live longer? Will I ever need a transplant? Will it reduce sudden cardiac death? Will there be any limits on activity?

 

Sep 10, 2019 · Tetralogy of Fallot in Congenital Heart Disease

2019-10-30 TOF

Tetralogy of Fallot is the combination of four congenital heart abnormalities. Presenting at birth, the four defects affect the structure of the heart. The defects include the narrowing of the pulmonary valve (which separates the lower right chamber of the heart from the pulmonary artery), a hole in the ventricular septal wall (the wall that separates the two lower chambers of the heart), an overriding aorta, and the thickening of the muscular wall of the right ventricle (the lower right chamber of the heart).

In this video from Dr. Joseph Dearani, details when the surgery will occur and what it contains, including the different surgical repair for an infant as well as for adults. Dr. Dearani details the difference between a transatrial or transpulmonary surgical approach and a transventricular approach. In addition, he explains why a pulmonary valve replacement is necessary later in life after a complete repair as an infant and details the success of these surgical approaches in the short and long term.

 

 

HELPFUL LINKS

 

Feb 13, 2019 · #AsktheMayoMom on Congenital Heart Disease with Dr. Joseph Dearani in Congenital Heart Disease

2019-03-15 Dr. Dearani

Congenital heart disease is a basket term for when a child is born with a heart that has a structural abnormality, such as a hole or an enlarged part. These abnormalities are oftentimes fixed surgically during a patient’s childhood. In the following Mayo Clinic #AsktheMayoMom Q and A hosted by Dr. Angela Mattke with pediatric cardiac surgeon Dr. Joseph Dearani, congenital heart disease is defined and explored, including defects that do not need surgery, an expanded conversation on Epstein’s Anomaly.

In addition, patient questions are taken and answered by Dr. Dearani.

 

 

The importance of an experienced, collaborative team is of the utmost importance to the success of the congenital heart disease treatment. Dr. Dearani stresses the importance of an experienced team, and educating yourself on the defect, as well as getting connected. Dr. Dearani says:

“This networking, I have found, is wonderful reassurance, for patients and families because they’ll talk to somebody who doctor so-and-so and some institution took care of. They’ll tell you what was good about it what maybe was not so good about it. It’s a great way to connect and learn and I would encourage families to do that as much as possible.”

Learn more about Congenital Heart Disease and the Adult Congenital Heart Disease service  available at Mayo Clinic’s campuses in Arizona, Florida and Minnesota, as well as the Children Congenital Heart Disease service is available at the Mayo Euguenia Litta Children’s Hospital in Rochester, Minnesota. Also, learn more about the current developments in CHD research.

Meet other people talking about Congenital Heart Disease on Mayo Clinic Connect. Join the conversation, share experiences, ask questions, and discover your support network…

Jan 18, 2019 · Ebstein Anomaly in Infants in Congenital Heart Disease

2018-01-18 DrDearani

Ebstein anomaly is defined as a rare congenital heart defect when the tricuspid valve, located between the two right heart chambers, doesn’t work properly. This is seen with the tricuspid valve sitting lower than normal in the right ventricle with abnormal formation of the tricuspid valve’s leaflets.

In the video below, Mayo Clinic cardiac surgeon Joseph Dearani, M.D. explains this anomaly and its treatment, including surgical interventions which have been performed approximately 1000 times at Mayo Clinic over the past 40 years.

Dr. Dearani explains when the diagnosis is made, and the unfortunately high mortality rate for a symptomatic newborn. He also details the existence of multiple surgical options, as well as the factors that go into deciding which surgery to choose.

He goes on to dictate how the diagnosis is confirmed, and how the severity of the anomaly plays a role in deciding if medical or surgical intervention is needed.

He finishes by describing how differences in the heart’s anatomy plays a role in deciding what kind of surgery is done, if at all, and details Mayo Clinic’s cardiology department and capabilities.

 

 

Additional Links:

More on Ebstein anomaly

Take part in a conversation: Heart and Blood Health

Oct 25, 2018 · Young gymnast reflects on heart surgery in Congenital Heart Disease

2018-10-23 YoungMayoPatient

Danikka is a seventh-grade gymnast. She recently had congenital heart surgery to repair Ebstein’s Anomaly. Danikka, and Dr. Joseph Dearani, her cardiac surgeon, sat down to discuss her surgery how she felt before, and how she feels now, after her surgery.  Watch their conversation here.

 

Sep 4, 2018 · Valve problems in children with heart disease: What patients and families should know in Congenital Heart Disease

2018-08-14-Dr. Dearani

Mayo Clinic cardiac surgeon Joseph Dearani, M.D., discusses valve problems in children with heart disease and what is important for patients and families to know. He primarily focuses on a leaky (regurgitant) valve within aortic, tricuspid, and mitral valves. He discusses the range of diagnoses as well as the difficulty in timing surgery to repair or replace the valves. He also details some symptoms to watch for in your children. The usefulness of the echocardiogram is detailed, explaining how it is a roadmap for surgeons to determine if they can repair a valve. Lastly he discusses the techniques of repair and the importance of surgeon experience, medical therapy, both in the short and long-term, as well as a discussion on survival factors and an introduction to the ability of the Mayo Clinic team.

 

 

Aug 16, 2018 · Mayo Clinic Radio: Congenital heart defects in Congenital Heart Disease

2018-08-14-Dr. Dearani Radio

On the Mayo Clinic Radio podcast, Dr. Joseph Dearani, chair of Cardiovascular Surgery at Mayo Clinic, discusses diagnosis and treatment of congenital heart defects specifically in children. Dr. Dearani, along with Dr. Tom Chives and Tracy McCray discuss an assortment of topics relating to congenital heart defects.

They discuss:

  • How long it takes to become a cardiac surgeon
  • The improved life outlook for those born with congenital heart defects
  • The causes of heart defects and most common defects
  • How babies are diagnosed
  • Operating on newborns
  • Symptoms and diagnosing tools
  • When surgeries are done
  • And the advances in robotic assisted surgeries

 

 

 

Aug 1, 2018 · Adult congenital heart disease: What patients and family should know in Congenital Heart Disease

2018-08-14-Dr. Dearani

In the following video, Joseph Dearani, M.D., Mayo Clinic Cardiovascular Surgery chair, provides an overview of adult congenital heart disease, including who should be caring for adult congenital heart disease patients.

He discusses:

  • The importance of a multidisciplinary team with training in congenital heart disease
  • Risks of operation and the different types of operations, including examples of what valve related operations would be better for different types of people
  • Use of blood transfusion
  • Addresses the controversy surrounding anti-coagulants
  • Stresses the importance of surveillance to address late complications
  • Provides information on the Mayo Clinic Program.

 

 

To request an appointment, as mentioned at the end of the video, call the numbers below:

Mayo Clinic’s campus in Rochester, Minnesota

Cardiovascular Medicine             507-284-3994

Cardiovascular Surgery               507-255-2000

Monday through Friday

8 a.m. to 5 p.m. CST