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Dec 30, 2019 · burning mouth syndrome very severe in Skin Health

@judybl1 My suggestion would be to Join the Burning Mouth group on Facebook. They are very active and supportive. There are over 2000 members from all over the world. I have suffered with it now for 9 years also and have it 24/7, it never left🥵
I have been to many different doctors and tried all the meds recommended to no avail. So not taking any meds for it now. I’m 74 now so I do take meds for other health issues. The older I get the harder the burn but having a supportive husband,family and friends makes life bearable.
I’m so sorry you are suffering and hope that one day we will wake up and it will be gone🙏🏻🙏🏻🙏🏻🙏🏻

Nov 21, 2019 · burning mouth syndrome very severe in Skin Health

@ristu Thanks for your suggestions. Have you tried Calcium channel blockers and did it help. I am not familiar with this?

Nov 20, 2019 · burning mouth syndrome very severe in Skin Health

@jshdma Yes, I currently see a Neurologist who is also a pain management doctor. Everything he has recommended so far has not worked(amitriptyline)or
didn’t agree with me and had to stop(Tramadol and Topamax). Since I have had bms for 8 years 24/7 I have tried all the other meds everyone else has mentioned (Gabapentin, Clonazepam, etc. to no avail.
I think I’m going to ask him about B12 shots every month as someone suggested.
Here’s hoping you will find something that helps🙏🏻

Nov 9, 2019 · burning mouth syndrome very severe in Skin Health

Welcome to the group!
I think you will find everyone to be very supportive and compassionate.

Oct 21, 2019 · burning mouth syndrome very severe in Skin Health

You must be a Facebook member to sign in. Search for Burning Mouth Syndrome (BMS) H.O.P.E
Support group. It is a closed group and you must ask to join.
Good luck, I think you will really like it. Please let me know how you make out😘

Oct 20, 2019 · burning mouth syndrome very severe in Skin Health

Thanks for getting back to me. I know you have been suffering with this for 6 years and I have had this 24/7 for 8 years 🥵
I have joined a BMS support group on Facebook and it has been very helpful. There are over 3500 members on it from all over the world and it is very active.
Please keep me informed and I wish you positive thoughts!

Oct 18, 2019 · burning mouth syndrome very severe in Skin Health

Did you get any relief from the Vibrational Therapy? If so can you describe what the procedure is like?🙏🏻