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Posts (18)

3 hours ago · burning mouth syndrome very severe in Skin Health

@jshdma Yes, I currently see a Neurologist who is also a pain management doctor. Everything he has recommended so far has not worked(amitriptyline)or
didn’t agree with me and had to stop(Tramadol and Topamax). Since I have had bms for 8 years 24/7 I have tried all the other meds everyone else has mentioned (Gabapentin, Clonazepam, etc. to no avail.
I think I’m going to ask him about B12 shots every month as someone suggested.
Here’s hoping you will find something that helps🙏🏻

Sat, Nov 9 7:00pm · burning mouth syndrome very severe in Skin Health

Welcome to the group!
I think you will find everyone to be very supportive and compassionate.

Mon, Oct 21 12:17pm · burning mouth syndrome very severe in Skin Health

You must be a Facebook member to sign in. Search for Burning Mouth Syndrome (BMS) H.O.P.E
Support group. It is a closed group and you must ask to join.
Good luck, I think you will really like it. Please let me know how you make out😘

Sun, Oct 20 1:19pm · burning mouth syndrome very severe in Skin Health

Thanks for getting back to me. I know you have been suffering with this for 6 years and I have had this 24/7 for 8 years 🥵
I have joined a BMS support group on Facebook and it has been very helpful. There are over 3500 members on it from all over the world and it is very active.
Please keep me informed and I wish you positive thoughts!

Fri, Oct 18 7:29am · burning mouth syndrome very severe in Skin Health

Did you get any relief from the Vibrational Therapy? If so can you describe what the procedure is like?🙏🏻

Thu, Jun 20 9:32am · burning mouth syndrome very severe in Skin Health

Wow, this Vibrational Therapy sounds very interesting, makes sense for what we are feeling and
I will be anxious to hear how it goes! Good luck🙏🏻