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Tue, Jan 8 4:02pm · Optic Nerve Meningioma patients in Brain Tumor

Has anyone had proton therapy ?

Sun, Jan 6 6:33pm · Optic Nerve Meningioma patients in Brain Tumor

It is very hard for me now to type. 🙂
Please forgive my mistakes.
The first brain surgery took 17 hours. Wow. Right ? 7 years later it came back with a vengeance. It had spread into my cavernous sinus. Wrapping around all 3 cranial nevers. Right side frontal lobe. I was terminal. Inoperable as well. Then 7 years later I had # 3 surgery they removed as much of the tumor from internal crartive artery. I was having 50 or so seizures a day. They couldn’t remove anymore without horrific permanent damage. Then I did proton beam. 5 days a week for 4 months. I’m now blind in my right eye.
I struggle even today. You must understand I was terminal. Proton beam extended my life considerably. 8 years later I bless god everyday. I will answer any questions anyone has. Please feel free to ask away. 😘

Sun, Jan 6 3:25pm · Optic Nerve Meningioma patients in Brain Tumor

I posted this to another person in this group. I’m not sure how this works. I’m new to the group.

Hello. My name is Paula. I had proton radiation in 2009. I have a Optic Nerve Meningioma. I have had 3 brain surgeries and 128 proton beam radiation treatments. If you would like to talk. I would love talk. I would love to share my experiences. I have been fighting for my life sine 1999.
God bless.
Paula

Sun, Jan 6 3:17pm · Optic Nerve Meningioma patients in Brain Tumor

Hello. My name is Paula. I had proton radiation in 2009. I have a Optic Nerve Meningioma. I have had 3 brain surgeries and 128 proton beam radiation treatments. If you would like to talk. I would love talk. I would love to share my experiences. I have been fighting for my life sine 1999.
God bless.
Paula