I have come to this site in hopes that someone could shed some light on the diagnosis my 6 month old daughter had received. Paroxysmal Tonic Upgaze Syndrome.
We have an appointment with the neurologist Monday morning. I have had numerous sources tell me I should push for an MRI. Are the eyes rolling back into the head a symptom of anything else? Since there is no test to confirm this disorder and it being extremely rare, I am worried that she may be under diagnosed