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Posts (8)

Apr 4, 2019 · New Daily Persistent Headache in Chronic Pain

This is very helpful. Thank you @dhramsey for sharing. We now have a list of other medications to try.

Apr 2, 2019 · New Daily Persistent Headache in Chronic Pain

Thank you @msb18. I have the 31-site chart & hopefully those sites are the ones the neuro plans to inject. We are cautiously hopeful – there are several published case studies on good outcomes for folks with NDPH. But as @dhramsey found, it is not always effective for everyone with this perplexing disorder. I appreciate the recent posts about Aimovig & will ask the neuro about that as well.

Apr 1, 2019 · New Daily Persistent Headache in Chronic Pain

Thank you dhramsey. My husband's neurologist said a trial of 3 series of shots, spaced 90 days apart. After that no further Botox if no relief.

Apr 1, 2019 · New Daily Persistent Headache in Chronic Pain

Hello. Interested to hear you've been receiving Botox injections. My husband is scheduled to do so next month. Have they been effective for you?

Mar 27, 2019 · Post-cholecystectomy or gallbladder removal surgery in Digestive Health

I had laproscopic gallbladder removal 24 years ago. Although I did not not experience pain post surgery, I developed severe GERD after the surgery, whch has not gone away. I've been on medication for all these years to reduce heartburn. I have always wondered how the surgery could have affected my lower esophageal sphincter and made it relax so often, causing multiple episodes of acid reflux every day.

Mar 8, 2019 · New Daily Persistent Headache in Chronic Pain

Has any one received an intravenous infusion of Haldol for NDPH? This was mentioned in an article in the journal Practical Neurology. It is being used by neurologists where my husband receives care.

Jan 6, 2019 · New Daily Persistent Headache in Chronic Pain

Hello corxdv: My husband has dueling diagnoses: ndph versus cervicogenic (cervical spine) headache. Because his neck MRI and X Rays showed arthritic changes in his neck (bone spurs, swollen facet joints) he was treated with cervical spine steroid infections and nerve blocks by a physical medicine and rehab specialist. The nerve blocs did not work and the physical medicine and rehab doc offered referral to a surgeon for "nerve decompression surgery" of his cervical spine. We are leary of this surgery since the cervical spine nerve blocks did not pinpoint the location of the problem. A neurologst recently diagnosed NDPH on the basis that (1) the cervical spine nerve blocks did not work; (2) he has no neck pain and can move his neck freely; and (3) his history and negative imaging tests are consistet with ndph. Please let us know if your wife had surgery and if she has found relief.

Jan 4, 2019 · New Daily Persistent Headache in Chronic Pain

Hello. My husband has suffered from NDPH for 14 months. Like many of the people on this board, he had no prior headache history and can remember the day his headache started. After numerous failed medication trials (and cervical spine facet joint inhections and occicpital nerve blocks) we are trying massage, biofeedback and possibly acupuncture. Your tips for choosing alternative practitioners came at a good time. Thank you.
CiCi