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Sun, Sep 8 10:21pm · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

@teg These are strictly alternative medicine. However, there was a Japanese Pharmaceutical company called Takeda that sold it for many years. They discontinued as for the conditions they marketed Serrapeptidase it was not more effective than placebo. It wasn't a big part of their revenues. For purposes of clearing blood vessels of plaques and possibly helping tissues remodel, these may be very useful. Check out Serrapeptidase from Biomedix labs and Nattokinase from Doctors best on Amazon. Read the reviews and see what you think from people who use these. They helped me, I believe.

Sat, Sep 7 9:24am · Pain in the butt - Can't sit down in Chronic Pain

@ailean55 I have all those indications on my MRI’s including lower lumbar DDD, hip arthritis, torn labrum cartilage on both sides , but not fibromyalgia. However, I found I was able to get rid of almost all my pain with stretching, exercise and the right supplements including serrapeptidase and nattokinase enzymes. Some hemp seed oil (I. e. Healthy fats) cut pain and I also take some resveratrol / quercetin / turmeric, a small amount of rutin & multivitamins extra vitamin c to the maximum recommended level and some extra magnesium. Be sure to check blood pressure as some supplements can make it go up or down and don’t use the enzymes if you are already on anticoagulants or have a bleeding disorder. I have several posts where I described specific exercises I do either in this thread or in the pudendal neuralgia thread. The enzymes were a game changer for me and my muscles started feeling less ropey with less scar tissue after 2-3 months. Then you can cut back on the enzymes (but to work properly I do believe you need to stretch and exercise (or walk)) some for best results. At least, that was my experience. Now I have much less sitting pain and much less stiffness from myofascial pain. PM me if you want a detailed protocol beyond the list I gave you.

Fri, Sep 6 9:28am · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

@resawaller Have you tried serrapeptidase and nattokinase enzymes? These may be able to aid in scar tissue remodeling and possibly reduce nerve compression (along with stretching and exercise). I believe I posted about these in this thread and possibly in the pain in the butt thread here under chronic pain topic. These helped me a lot, I think.

Sun, Sep 1 11:40pm · Pain in the butt - Can't sit down in Chronic Pain

@schony1087 there is a long thread with many comments in this section and also in the "pudendal nerve entrapment" thread of chronic pain. There may be some suggestions there that will help you. Unfortunately, those looking for a quick fix via surgery generally are not pleased to find out that due to the highly vascular and innervated area, surgery is often not an option. In fact, you're indicating surgery may have caused an issue. However, the areas are soft tissue and stretching, exercise, the right meds and supplements for pain and the right type of body work (ultrasound / myofascial techniques, etc.) might help you out tremendously. I've made quite a few detailed posts myself. My pain has gone way down over time so it can get better. Please look over those two threads extensively.

Mon, Aug 19 1:15pm · Pain in the butt - Can't sit down in Chronic Pain

@jeanie26 perhaps this may be a skin problem related to nerves? If so, Consider seeing a dermatologist. Extreme nerve irritation can cause skin changes and affect the amount of blood flow to an area (e.g. in CRPS; I’m not implying you have that but nerves do affect circulation). To that end, aerobic exercise may help nerves get better blood flow. I personally like the stair master but walking, treadmill, elliptical might be good. Dermatologists may have some skin care suggestions or products. Also, if you are concerned about something like Pilondial cysts (I wasn’t sure about the term you used) or such that can occur in that area it is possible to get on antibiotics like minocyclin long term – which could give you peace of mind. You’d need to speak with your doctor about that.

Sun, Aug 18 6:01pm · Pain in the butt - Can't sit down in Chronic Pain

@amomynous chiropractic adjustments didn’t help my sitting pain. The other things I mentioned in this post and pudendal nerve entrapment thread did help me. I think it depends on the nature of someone’s issue.

Wed, Aug 14 12:38am · Pain in the butt - Can't sit down in Chronic Pain

@ecalderman I’m pretty sure I had ischeal bursitis, too. Try the enzymes serrapeptidase (biomedix brand buy the 260,000 u bottle), nattokinase (2000 U doctors best brand) and I just started working lumbrokinase (doctors best brand). All are available on Amazon. Try with higher levels of vitamin c. I think fibrin (which normally helps blood clot) gets bound to nerves, tissues, bursa and causes stiffness, pain and inflammation (that’s speculation- but, could be right). Fibrin has been implicated in several autoimmune diseases. It took a few months but I had a post above where I mentioned these enzymes. The use of these enzymes and proper stretching and exercise cured me- and I believe it is curing the root problem which stops the pain and the inflammation- not simply dulling the pain with meds or surgery. At least I feel it is working for me. If you don’t have a clotting disorder and you can tolerate the enzymes (take on an empty stomach) they might help. Good luck.

Thu, Aug 8 11:55pm · Pain in the butt - Can't sit down in Chronic Pain

@tjp4 There is also a pudendal nerve entrapment post and I'm going to reproduce a post from that. I've had sitting pain and it got a lot better with the following. My doctor thought I had ischeal bursitis at first and after two years when a bunch of myofascial pain and stiffness mostly resolved he though it was some type of myofascial pain syndrome. The idea is, tight myofascial tissue may be compressing your nerves, creating pain – especially when sitting. Also, consider looking for a physical therapist who specializes in pelvic floor rehabilitation. In some cases, this my involve treating internal trigger points and this has been described in the book "a headache in the Pelvis" by Wise and Anderson. Did the doctors talk to you about trigger point therapy and since you've been diagnosed with Levator ani syndrome did they suggest seeing a pelvic floor specialist? They might be able to do something about your condition. If untreated, these things seem to be able to go on and on, I believe. With treatment, they can often be made better.

Here was a recent post from me from the Pudendal nerve entrapment post: There were many suggestions for coping with sitting pain in old threads, above (in pudendal nerve entrapment thread). Mine has gotten much better thanks to stretching, exercise, MFR and I found a therapist that used intense ultrasound while he does active release stretching. Recently, I've started taking some enzymes (serrapeptidase (biomedic labs) and Nattokinase (Doctor's best); both from Amazon) and these helped immensely. I believe these help the tissue remodel (compression from MFR isn't the only way to remodel the fascia – electrical (galvanic) stimulation, ultrasound, stretching, exercise can assist this process, too). However, I had a lot of stiffness and I do believe it is from deposits of fibrin in muscles, on nerves, on bursa, etc. My pain level (and stiffness) is way down after taking the enzymes I mentioned (on an empty stomach). If you are not on blood thinning medication already, it might be worth a try. That seems to be the contraindication. Also, for some reason 10-15% of Especially if you have stiffness, too. I believe that now I am mostly dealing with healing of tendons that attach to the ischeal tuberosities – hence I have some small sitting pain (which has been getting better over time). Here is a review I wrote for an enzyme product on Amazon:
Long story short I was having some myofascial pain (stiffness, sitting pain) in the legs, glutes, lower back. It’s been getting better thanks to various supplements (especailly Vitamin C with citrus bioflavinoids, quercetin / resveratrol, stretching and exercise). I also had plantar fasciitis in the feet in the past as well as some sciatica symptoms (which is due to some type of nerve compression / irritation somewhere along the nerve).

This helped along with taking nattokinase (2000 U) and I worked my way up to 2 tablets of the Serrapeptase 3 times daily (one dose with the Nattokinase) Eventually, I’ll cut back to a maintenance dose and maybe use just 1 of the 80,000 U serrapeptase and 2000 U nattokinase.

While speculative, deposits of fibrin may be the culprit in causing tissue stiffness and improper tissue remodeling as you age. This may accompany (or possibly cause) conditions like plantar fasciitis, phlebitis (and some leg swelling), stiffening of the tissue – all things I am encountering. I noticed a decrease in sitting pain (i.e. less glute stiffness) right away within about four days of starting serrapeptase. On higher doses, I occasionally felt tingling in my feet while walking – but not in a painful way. More like the itching a healing wound might have. I had some areas near the ischial tuberosities that had dense areas that possibly were scar tissue-like (many years of martial arts with kicks, plyometric moves, hard landings probably contributed with this as well as possibly abnormal amounts of fibrin that were deposited on top of that as I aged – that was suggested to me by an injury massage therapist who specializes in aging athletes). Over several weeks, these became smoother and less ropey feeling. Prior massages including aggressive trigger point massage could not remove this / smooth this out. I’ve done all kinds of stretching, exercise and massage. These enzymes have been one of the most effective treatments in healing what I’ve got. Once I started on these enzymes I could feel the difference within a couple weeks. I could see some more recent scars that I have that were raised up appear flatter and remodel.

I generally research what I take and also read all the reviews from people taking these products and also scholarly articles. Based on what I’ve read, (and this is speculative – I can not state any of this as a universal medical certainty) it is quite possible that Serrapeptase can assist tissue remodeling, help remove / minimize scars / adhesions / help break up cysts, etc., including those that may irritate nerves, too. For many people, poorer healing may accompany aging. I believe this enzyme helps healing. I had no gastric irritation from either the 80,000 U version of the 260,000 U version of the enzyme. I was not recompensed in any way for this review. At some point, I'll drop down to a lower maintenance dose with the 80,000 U tablets, I suppose. End of post.
These enzymes and the supplements I mentioned may be worth a try for anyone experiencing pain from nerve compression. The contraindications for the enzymes are if you are already on blood thinners or if they give you gastric irriation. I personally believe that, for me, these treatments needed to be done together. That is, upon using the enzymes suddenly the stretching and exercise really made a much more rapid breakthrough (although the vitamin C and other supplements were helping – but it was slow). Maybe you'll make a breakthrough. I just took a 12 hour flight and only used 1 extra thin cushion and was relatively comfortable. For me, that's way better than it had been.

Also, you can search online for terms involving levator ani and such as: "internal trigger point release for levator ani syndrome" or "Levator ani treatment", etc. A Pelvic floor specialist (a phyisical therapist) should be able to help you, I should think. Good luck.