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Sat, Feb 2 2:54pm · Anyone with APS and having strokes received perispinal etanercept? in Autoimmune Diseases

Well i had it-on Jan 23….it works, i would recomend to anyone wanting it to try it…go for it. I was very nervous when traveling to get it that i actually had a panic attack….seen in ER, eval and dischgd. Many good things came of the injection… the best response was the decrease in stroke caused “head fog”which came about, which gave me an increase in my overall happiness, returned hearing to left ear- felt a pop like when getting off a plane then my ear sounds opened up… i didnt even know i had a deficit in this ear until this happened. Walking is smoother. Can shower more steadily due to better balance. Cindy

Tue, Jan 1 9:37pm · Anyone with APS and having strokes received perispinal etanercept? in Autoimmune Diseases

I appreciate your reply but because APS influences many meds i wanted to know specifically if anyone with APS had done this, i am aware of this information and i thank you, Cindy

Tue, Jan 1 7:44pm · Anyone with APS and having strokes received perispinal etanercept? in Autoimmune Diseases

I want to try this but i am concerned my residuals could get worse. I am looking for some support or at least some feedback from those who have any experiences with this, please help, thanks,Cindy

Tue, Jan 1 7:36pm · Antiphospholipid and Lyme disease in Autoimmune Diseases

I had lymes disease twice with the “bullseye”and was treated both times, had OPS(open heart surgery) to remove libman Sachs and have my mitral “valve repaired” because of this. I have had a few years to investigate this correlation: Articles and people say APS needs a trigger” and this/lymes could be one of the triggers as many people have found this to possibly be their trigger. Cindy