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Posts (8)

Tue, Apr 30 9:28pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

Hello Sugardoll4 I am glad you found this board. So if I am reading correctly you have an upcoming appointment with a surgeon? They will discuss surgical excision of the area to make sure there is nothing else hiding as with a diagnoses of ADH there is a possibility of having cancer cells hiding so they will do a lumpectomy to confirm the diagnoses. I would definitely discuss the symptoms you are and were having with the doctor.

Wed, Feb 27 8:04am · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

I am so sorry for what you are having to deal with. I had your same diagnoses. I found the lump right before Christmas of 2016. U/S did not show anything but breast MRI in Feb. of 2017 showed the spot. I had a biopsy done and was diagnosed with ADH. I had a lumpectomy to take out the ADH and all was clear. I am prone to cysts / tumors and don't know why. I had to have a hysterectomy in May of the previous year due to having 3 large fibroids and then after the breast issue ended up having my ovaries out due to large cysts on them and now they have found a pericardial cyst. I am high risk breast cancer and was even before they ADH diagnoses. I tried taking the Arimidex pill for prevention but stopped it due to the side affects and I don't think I am going to try another one either. I go for breast MRI/s / mammograms alternating every 6 months. Some doctors will take your breasts if you ask due to the diagnoses if you are high risk and some won't. I don't know why some will and some won't. I don't want to get rid of mine so I will continue with follow-ups every 6 months. But if this is something you really want maybe go get a second opinion with a different doctor and see if they will. I am also only 45 years old. My husbands side all have the BRCA1 gene I have not been tested so I don't know if I do or not but either way my kids are at extremely high risk. We have not tested the kids because if we do they can be denied from getting life insurance if they test positive and we don't want to take that away from them should they every want to get that when they get older. We are just assuming they are positive and taking precautions as are their doctors.

Thu, Feb 21 11:22am · endometrial ablation or Hysterectomy in Women's Health

I am so sorry about your brother. There is just way to much of this nasty cancer out there.

I was on Anastrozole for 1month following my ADH diagnoses I had such pretty much every side affect you can possibly have so I had to stop taking it. They don’t want me taking tomaxafin (spelled that wrong) as after my lumpectomy I ended up with a blood clot. So I am trying to get healthy, I have cut all sugar out of my diet and have lost 40lbs and am exercising in the hopes of keeping it away that way. Blessing to you and everyone on here.

Thu, Feb 21 8:34am · endometrial ablation or Hysterectomy in Women's Health

@patsy2910 I didn’t realize you could test positive both BRCA 1&2 I thought is was one or the other. My husbands side of the family are all BRCA 1 positive. I had ADH a year ago and have a 19 year old daughter who has been told since she is BRCA 1 positive and now with a mother having a diagnosis she needs to start doing mammograms at age 25. She was not impressed.

Wed, Feb 20 7:25pm · endometrial ablation or Hysterectomy in Women's Health

First of all I am sorry you are having such a difficult time with your cycles. I got my first cycle when I was 13 and only got it maybe 1 or twice maybe 3 times a year due to having PCOS. After getting married and trying to have kids I ended up having to go through fertility treatments. I my kids are 12 years apart 1 with fertility 1 without (the later without) but I had to be on birth control when we were not trying to get pregnant in order to regulate my cycles. At age 42 I was severe abdominal pain and a CT scan showed I had 3 fibroids in my uterus so I had a hysterectomy. I wanted the doctor to take my ovaries also but he said because I was to young to be put into menopause already.

You will have to schedule an appointment with your doctor and talk about your options. I am a nurse and I don’t know of any doctor that will do a hysterectomy just because someone wants one. You usually have to be having issues/problems.

Side not exactly 1 year after my hysterectomy the doctor ended up having to take my ovaries out also due to the ADH diagnosis and a large complex cyst on left ovary.

Sat, Feb 9 8:44pm · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

Sorry you are dealing with both ADH and ALH. I was diagnosed with ADH in Feb of 2017. I have been doing mammograms and Breast MRI ulternating every 6 months for the last 5 years. I am 45, I have been doing Mammograms yearly before that since I was 30. I am high risk breast cancer as I have 3 relatives that have had it and I have extremely dense breast tissue and have gone through fertility. Anyway, even though I do checks every 6 months I found the lump myself in Dec of 2016 right before Christmas. I called my breast doctor and went in for an ultrasound. The Doctor could also feel the lump but nothing showed up on ultrasound. I was due for my breast MRI in Feb. so I was told we would wait for that unless I noticed the lump getting bigger. In Feb I had the MRI which showed the spot. Had a biopsy via-MRI which showed ADH and radial scar. I was referred to a breast surgeon and a lumpectomy was recommend as with ADH there can be cancer hiding with it. so I had the Lumpectomy on Feb 19. 2017 and everything came back clear. I did end up Mondors disease after the lumpectomy which was not fun, and because I also have had a completely hysterectomy with my ovaries out due to cysts and tumors on them also. I could not do tamoxifen. I was started on Arimadex to help lower my estrogen even more since ADH is driven by estrogen but I had so many awful side affects from it that I was only on it for a month and had to stop. My husband has the BRCA1 gene so I worry about my kids with that on his side and now me having this really puts my kids at risk. My daughter was told she should start getting mammograms at age 25 (she is 19 now and my oldest). Good luck to..

Sat, Jan 26 11:30am · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

First off thank you everyone for your posts as they really do help.. Cindylb question for you? You had ALH 5 years and 2 years after that you had invasive breast correct? Did they have you on any medication after the ADH such as tomoxafin or arimidex? I can't take tomoxafin because I had a blood clot after the lumpectomy so they won't put me on that and I had way to many side affects from the arimidex so I am not on anything. I have a couple woman in my family that have had breast cancer and my paternal grandmother died from it (granted when she had they didn't have as much technology or advanced chemotherapy as they do now). According to my doctor it is now if I get breast cancer it is when I get it. I do mammos/Breast MRIs alternating every 6 months. according the doctors I have very extreme dense breasts. My husbands side of the family all of BRCA1 jean so concerned about my daughter as with that on my husbands side and now me having this doctor said she needs to start having mammos at age 25. Thank you for your reply.

Dec 31, 2018 · Anyone dealing with Atypical Ductal Hyperplasia (ADH)? in Breast Cancer

Hello everyone I am so happy to have found this board! I was diagnosed with ADH and radial scar in Feb of 2018. I have a very long story. To make it a little shorter though I had a hysterectomy in May of 2017 due to severe pain and 2 large fibroids. Dr insisted I needed to keep my ovaries though because I was to young (44). Dec of 2017 found lump in left breast had U/S which did not show anything. In Jan scheduled me for breast MRI which showed the lump had biopsy which diagnosed ADH. Feb had lumpectomy which got all ADH out and also diagnosed radial scar. In May of this year I had lower abdominal pain again and was diagnosed with a 5cm complex cyst on left ovary. Back to docto and back into surgery to have ovaries out. I am very thankful that none of the tumors/cyts came back cancerous but I have had so many of them this last year. I can’t take Tomoxefin as I ended up with a blood clot after the lumpectomy and I had to many side affects from the arimodex. It is almost a year post lumpectomy and I still have pain in the breast from the surgery. I do ulternating mammograms/MRI every 6 months as I am high risk breast cancer and have as they have put extremely dence breast tissue. What I am wondering is there anyone on here who is in the Same or similar situation. Thank you