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Fri, Mar 13 8:36pm · Has anyone any had the STim Wave spine stimulator installed? in Spine Health

I must apologize. I have the Boston Scientific “Wavewriter”. Is this the unit you were referring to?

Fri, Mar 13 8:28pm · Has anyone any had the STim Wave spine stimulator installed? in Spine Health

Hi, I had a Boston scientific stimwave inserted in 2018. Unfortunately it was not successful. I understand your inability to find out any concrete information on the product itself from individuals having one. Everything seems to be advertising for their product. My whole lower back is fused which left me with bilateral drop feet and severe peripheral neuropathy. Doctor thought the stimulator would give me pain relief. I had many problems charging my unit. Would sit for 3-4 hours and just couldn’t get a charge. When I did manage to get a charge I felt no difference in my pain levels. The reps that were assigned to me for help left a lot to be desired. The fact that I live in a remote area didn’t help. Many unanswered phone calls and little help with my problems. I understand that this is a big problem within all the major SCS companies. I have resorted to just turning my unit off and awaiting its removal. My pain doctor is strongly suggesting the Nevro unit as he has had such success with it. I haven’t decided what road to follow as yet. I strongly suggest you look into the availability of good reps for whatever unit you decide upon. My heart aches for you as I truly understand where you’re coming from. Pain is not fun and the inability to not be productive is awful. If I can answer any questions for you I’ll be more than glad to share my experiences with you. Good luck with your decisions.

Jan 3, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Well, I tried to send my email address and they wouldn’t let me do it. Thanks for offering but I guess it’s against the rules at Mayo. Appreciate your help!

Jan 3, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I take:
Gabapentin 600 mg, 1 am,
1 noon, 2 bedtime
Duloxetine 60 mg, 1
bedtime
Baclofen 10 mg, l am, 1
bedtime
Vit B 12 100 mg, 1 tab
daily
Alpha Lipoic Acid, 1am,
1 pm
Hydrocodone 7.5-325, 1
every 8 hrs.

These are the meds that I take for my neuropathy. Are you interested in the other drugs I take for blood pressure etc. Also wanted you to know that my diagnosis is for “Severe Peroneal Neuropathy.” I just had a nerve conduction study done and the results came back with the above results. If you need any more info please send me a note. Thanks again for all your help!

Jan 3, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Oh my gosh, you are an angel in disguise!! I just got my first pair of orthotics that must be similar to the second ones you referred to. I went to a orthodox/prosthesis physician and they were covered by Medicare. These come up to mid leg with velcrose closings. They are not very comfortable. I have an appt to go back for an adjustment. What kind of shoes do you wear with them? I didn’t realize I was so vain but, I guess I am. I have ordered and returned 6 pairs of orthodoc shoes and they are UGLY. I wear a 9 1/2 shoe and then add the 1&1/2 size up (for orthotics) plus extra wide width ( for orthotics) and you end up with GIANT shoes. HELP!!!

Jan 3, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi Margot, No, my neurosurgeon never did acknowledge the fact that my back surgery was the cause of my dropped feet. I presumed that it was the cause of my drop feet since it (drop feet) happened shortly after my surgery. I will add that I just had a nerve conduction test given by a neurologist. The results firmly stated that my surgery was not the cause of my dropped feet. So, I am now presuming that it is genetic in nature. My dad had “neuropathy” that was probably never correctly diagnosed. Wish I could have given you more positive information to help you with the cause of your foot drop. This is not fun to deal with! Good luck in your quest for more knowledge.

Jan 2, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you for your quick response. Now I will begin my homework. Sounds like it is quite lengthily. It may be awhile before I get back to you. I am very encouraged about what I’m going to be reading. Thank you for taking the time to help those of us that are so needy!

Jan 2, 2019 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi John, I do apologize for my lack of experience in joining your closed Facebook. I honestly thought I had already joined. I will now go back to your earlier post, read a lot, learn about the supplements, and make a decision. I will learn about the list of supplements that you sent and the importance of omega 3 and 6 and the Mayo doctor that recommends them. I must have been in too big of a hurry to obtain your help. Thank you for your expertise on this subject. It’s always so nice to learn from someone facing the same problem.