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First Name
Bobbe Jo

City
Chandler

State/Province
AZ

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Posts (48)

7 hours ago · Watching a Meningioma Brain Tumor in Brain Tumor

Man I don't blame you for not wanting your head opened back up. I am a young 66 year old just starting the wait and watch game. I had emergency surgery Sept 27th, 2018. Did 6 weeks of radiation and 6 weeks of tremozolomide. Right now everything looks good even looks like it's backing off a little. I'm doing old Chinese medicine and therapeutic doses of vitamin C IV drip every other week. I will pray yours backs off for good.

Sun, May 5 12:35pm · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

To lose a child, I can't imagine. So very sorry for your loss:(

Sat, Apr 20 11:00am · Mayo Appointments: Brain Tumor 48-hour Access Program in Brain Tumor

It took me a few weeks to get in but I have found Mayo to be very disorganized and my NO has no bedside personality:(

Mon, Mar 25 1:07pm · Watching a Meningioma Brain Tumor in Brain Tumor

Thank you.

Mon, Mar 25 10:11am · Watching a Meningioma Brain Tumor in Brain Tumor

I've got a watch area where a new tumor is trying to form just a bit below where they took out the 7.2cm one. They want me to go back on double temozolomide and I really don't want to and at 66 I would not like anymore surgery.

Sun, Mar 24 2:49pm · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

Thanks for ur feedback. I appreciate it.

Sun, Mar 24 11:53am · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer

I thought I had mine figured out but the MRI showed a new glioblastoma is trying to form in the same area that the old one was cut out of:( Now I have to decide if I want to pursue a trial or go back on high does maintenance of temozolomide to maybe get a few more months of life.
That's hard because a trial is just a trial and you don't know what you'll get or what side effects it will produce……..I have to let my doctor know by next Thursday….oh my:(

Tue, Feb 26 9:55pm · Mayo Clinic AZ and FL Living-with-Cancer Patient Symposium in Cancer

I would love to come to the event next year. Thank you.