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Bobbe Jo




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Posts (50)

Tue, Jul 30 5:45pm · GBM Trials - TTFields brain device in Brain Tumor

I chose quality vs quantity of life so I am not taking tramadol or using Optune. I have been doing great:)
On Chinese herbs and vitamins and get therapeutic dose of vitamin C IV every couple of weeks. Last MRI July 19th and tumor threatens to grow back but has not:)

Sun, Jun 16 10:14am · Watching a Meningioma Brain Tumor in Brain Tumor

Good info to know. Thanks.

Sun, May 26 11:06pm · Watching a Meningioma Brain Tumor in Brain Tumor

Man I don't blame you for not wanting your head opened back up. I am a young 66 year old just starting the wait and watch game. I had emergency surgery Sept 27th, 2018. Did 6 weeks of radiation and 6 weeks of tremozolomide. Right now everything looks good even looks like it's backing off a little. I'm doing old Chinese medicine and therapeutic doses of vitamin C IV drip every other week. I will pray yours backs off for good.

Sun, May 5 12:35pm · Pleomorphic xanthoastrocytoma tumor (Pxa): help in Brain Tumor

To lose a child, I can't imagine. So very sorry for your loss:(

Sat, Apr 20 11:00am · Mayo Appointments: Brain Tumor 48-hour Access Program in Brain Tumor

It took me a few weeks to get in but I have found Mayo to be very disorganized and my NO has no bedside personality:(

Mon, Mar 25 1:07pm · Watching a Meningioma Brain Tumor in Brain Tumor

Thank you.

Mon, Mar 25 10:11am · Watching a Meningioma Brain Tumor in Brain Tumor

I've got a watch area where a new tumor is trying to form just a bit below where they took out the 7.2cm one. They want me to go back on double temozolomide and I really don't want to and at 66 I would not like anymore surgery.

Sun, Mar 24 2:49pm · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms

Thanks for ur feedback. I appreciate it.