About

First Name
Bobbe Jo

City
Chandler

State/Province
AZ

Pages

Member not yet following any Pages.

Posts (41)

Tue, Feb 26 9:55pm · Mayo Clinic AZ and FL Living-with-Cancer Patient Symposium in Cancer

I would love to come to the event next year. Thank you.

Tue, Feb 26 11:30am · Mayo Clinic AZ and FL Living-with-Cancer Patient Symposium in Cancer

Sounds like that would be really interesting.

Tue, Feb 26 10:37am · Mayo Clinic AZ and FL Living-with-Cancer Patient Symposium in Cancer

Is this in Florida? Because my Doctor at Mayo in Scottsdale/Phoenix has never said a thing but that would not surprise me!

Wed, Feb 13 8:45pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

I have a disk with MRI photos cause I ask for it at the time of my Imaging at Simmon Med on January 17th. That's why I would have thought the doctor would of explained anything new on the images at our January25th appointment. Frankly I don't think he did his homework and figured no one would notice I guess. So now we've been told we'll go over it at the next appointment March 22nd. But I am to have a new MRI before that! Doesn't make much sense to me.

Wed, Feb 13 4:12pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

Now the Doctor says in a recent message through the portal that he's gone back over the MRI and says that he'd gone over it with Don & i on the 25th of January. However there were only 2 MRI pictures on his computer screen during our visit that day…..1 was pre-surgery MRI & the other was recent. He just said, "Even though the report didn't say so, the MRI looked good". At that time I hadn't seen the recent MRI report so I didn't know what questions to ask, but I've seen it now and why he didn't show us the mass the Simmon Med imaging person saw…I have no clue! Not a very comforting feeling for me.

Wed, Feb 13 10:45am · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

A team from Barrows Brain and Spine did my surgery and they did a wonderful job. Then I went to Ironwood Cancer Center for my 1st round of chemo and radiation. Now I'm going to Mayo Clinic and really am not impressed at all:( I am not impressed with my doctor at all.

Sat, Feb 9 10:35am · Pituitary and Meningioma advice in Brain Tumor

I'd definitely get a 2nd and a 3rd opinion! Most surgeons say it's easier to remove a tumor when it's small…not set around and watch it grow!!!!!

Wed, Feb 6 6:53pm · GBM Grade 4 with stroke symptoms late on in Brain Tumor

I had a 7.2cm tumor on the right side of my brain and the day before I was taken to ER the left side of my face had fallen and the Doctor diagnosed me with Bells Palsy. That night went to dinner with family, passed out for a few seconds then daughter said that's it we're going to ER. The next day Barrows took the tumor out and in a couple weeks I was diagnosed with glioblastoma grade 4. I was really tired when I came home from the hospital but it's been 4 months since surgery and I'm doing real well. Been through 6 weeks radiation and temozolomide and will start double temozolomide end of February. Then hope to get the Optune device in a few months.