Anyone else with CREST develop Barretts esophagas?
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I was overwhelmed reading everything you are going through and have tried. Most of what you’re dealing with I cannot comment on, but regarding acid reflex, just started making a tea by combining 1 to 1 Hawthorn and licorice (each is available in organic tea bags) I understand licorice can help rebuild the stomach coating, but raises blood pressure, while hawthorn brings down inflamation and lowers blood pressure, so by combining you get what is good and cancel what is bad. Recommended by an asian practitioner who is also an MD, so I thought it would be worth a try. As I say, I am just starting it.
I also wnet gluten free for my scleroderma and added vegetarian. Based on what I read, I suspect vegan would be better, but vegan with gluten free ahs been harder for me to combine. Now I need to get control og GERD, still a challenge.
I was first diagnosed with sjogrens, but later found I have scleroderma. CREST. My Rhumatologist advised me to carefully consider the side effects of available drugs and when I felt worse than the side effects would make me, to let her know. Instead I started reading evey book I could find on niutrition solutions for specific illnesses. The swelling joints, aches and pains had been horrible, but gluten free and vegetarian (yes, both) made the most amazing difference for me. I still am trying to get a handle on the GERD (I see you are on nexium).