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Jun 20, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

You are right. This would be so much simpler to understand if the supplements that are being recommended to help relieve the PN would be listed individually by brand name, how much to take of each, frequency to take, and where to purchase.

Apr 12, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I live in Greenville SC and they have an office that uses the Calmare therapy. I called them and they said It is 10 treatments at $225 per treatment and each treatment lasts about an hour. Has anyone used this treatment and if so what were the results? I have idiopathic non diabetic small fiber PN. Thanks. Bruce.

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Apr 12, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

By the way John, thanks so much for moderating this group because neuropathy is a complicated and horrible disease.

Apr 12, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi John. I have idiopathic non diabetic small fiber PN. Have even been to Duke and Emory and diagnosis confirmed my Neurologist diagnosis. I have pain only in my feet and ankles which has progressed since diagnosed in 2003 but much worse in last year. I take lyrica and tramodol as needed. I don’t want to get on opioids. They scare me. Have tried anodyne and laser treatments but only gives temporary relief. What are the supplements that you are taking which are helping you? Thanks. Bruce

Apr 11, 2019 · People with non diabetic neuropathy in Neuropathy

Initially started gabapentin in 2003 and switched to lyrica when it came available. However lyrica was not generic and very expensive. I have a tramodol RX too.

Apr 11, 2019 · In Search of Relief in Neuropathy

John, thanks for the information on Calmare. Will pursue. Bruce

Apr 11, 2019 · In Search of Relief in Neuropathy

Hi John. We have a Calmare treatment center here in Greenville SC. I have non diabetic idiopathic small fiber neuropathy. Diagnosed in 2003 and in last year the pain has gone to 10. I have even been to Duke for 2nd opinion and saw a neuro at Emory who talked about a stimulator which frightened me. Do you know anyone with my diagnosis that had success with Calmare treatment. It is FDA approved but my Medicare and supplement will not pay yet. Also Mayo and Johns Hopkins give it good reviews for relief of neuropathic pain. It is 10 consecutive treatments lasting 1 hour and cost is $225 per treatment. Also I have to be off lyrica for a week prior to treatment. Thanks. Bruce

Apr 11, 2019 · People with non diabetic neuropathy in Neuropathy

Yes. For pain I take 100mg lyrica am and 100mg pm, CBD oil don’t know if helps yet, tramadol as needed