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Dec 29, 2018 · Unknown muscle issue in upper mid-back in Bones, Joints & Muscles

Hi Martin, thank you for your reply! I haven't seen a neurologist specifically, but I've had many "quick checks" done at various appointments, with no obvious issues. I would've never thought to relate that with the syrinxes, so I'm going to do some more research on that! I appreciate your response to my mystery health issue – it seems that it may remain a mystery for now.
Regards, Sarah

Dec 17, 2018 · Unknown muscle issue in upper mid-back in Bones, Joints & Muscles

I've had chronic back pain for 15 years and no one can figure out what's wrong. It started when I was 11 – one night, I woke up in horrible sharp pain, trying anything to relieve it. Relief comes in the form of me moving/adjusting/stretching my back to make my muscles stop hurting – but relief only lasts a few seconds so I do it all the time. After having many MRI's and CT scans, the only oddity is a series of 3 syrinxes that span the entire length of my spine – and mild scoliosis. Most muscle problems make the muscles painful to touch, but that isn't the case for this. It's like they're hurting themselves but that's it. I also have an incredibly tight back, with huge knots in my neck, shoulders, and back, and they twitch and move a lot.
The amount of pain can be unbearable and I've ended up in the ER a few times to try and get help. Sometimes shots of muscle relaxers help, sometimes they don't. I've been accused of seeking pain killers because they dont believe I'm in pain since the muscles aren't sensitive to touch. I go to the chiropractor and get deep tissue massages every other week, with no major relief. I'm afraid that it will never get better, and never be diagnosed.
Has anyone heard of anything like this? I've been researching for so long and haven't come up with anything.
Thanks in advance!