I'm sorry to hear of your health issues, though mine aren't identical, they are extensive. 15 years having seizures that went undiagnosed, they weren't Grand Mal. Years of visual migraines likely related to the seizures, but never proven. I've gone blind in one eye for less than 15 minutes twice over 15 years, nearly blind several times, experienced periodic episodes of double vision, one almost resulting in loss of consciousness, and believed to be Basilar Migraine. I've had bouts of PVCs, premature ventricular contractions, and one doctor wanted to ablate an episode that was particularly persistent but there was no emergency reason to do it, so I waited and they subsided. And I developed Chronic Urticaria, aka Hives, that lasted almost 2 years. To top it off, last November, I went into Afib, and am still in it today.
So, I understand, but the doctor's have no real answers for me either.
I'm curious about your heart rate, is it caused by the Afib/Atrial Flutter or not? The heartbeat originates at on the top of the heart, travels to the junction between the top and bottom known as the AV (Atrio Ventricular) Node. This node ordinarily keeps the very fast Atrial Signals from being conveyed to the bottom of the heart, at least not at the extremely fast rate of the atria.
If I'm not mistaken, sometimes a Pacemaker is used in the case of Afib, but I think they ablate the AV Node so that no activity from the top of the heart can reach the bottom. It makes the person Pacemaker Dependent for the rest of their life, but it should stop the fast Ventricular Rate.
Why were you given a Pacemaker? Are you currently considered to have Congestive Heart Failure, if so, my wife thinks that's contributing to the pneumonia?