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Dec 14, 2018 · Chronic Mono? 5 years undiagnosed in Autoimmune Diseases

Hi @karmagirl, I too have been dealing with a diagnosis of reoccurring mono. I'm a 47 yr old male and the doctor(neurologist) that gave the diagnosis has shut down his practice due to retiring Sept.'18. I'm in desperate need of a doctor or hospital or anyone that knows anything about this. I've been dealing with this for the last 2.5 years. My retired doctor found this, the reoccurring mono, August of '17. My test results come back positive for active mono and the doctors around me seem to dismiss the findings(all I'm told is there's no such thing). Trying to keep up with all the files, reports, mri's,ct's, x-rays, blood work is crazy. My symptoms go from fatigue, sore joints and muscles to back spasms to the point I'm breathless. When this reoccurs, about every 3-6 months, I'm unable to work, at times walking becomes a major undertaking, sleep is unheard of, sitting for any length of time is killer, but yet standing is hard due to weakness/soreness in my legs. I'm hoping maybe someone here can lead me in the right direction to getting my life back.