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Fri, Nov 22 12:07pm · Paroxysmal Atrial Fibrillation patient wants med management only in Heart Rhythm Conditions

I manage my Ventricular Tachycardias with Flecainide. It has harsh side effects but it does suppress VTs. I'm sure your drugs would be milder. Before committing to a new drug, I would start supplementing 400 mg of magnesium every day just to make sure it isn't as simple as low magnesium. Blood tests can show you are in range, but it doesn't say anything about magnesium in the heart, which is critical for cardiac conduction.

Mon, Oct 28 8:26am · Does anyone with AFIB NOT take blood thinners? in Heart Rhythm Conditions

Jo, I don't blame you for not wanting a drug. I believe thin, healthy blood is best achieved naturally. If you don't have an underlying condition and docs recommend it just cuz you fit a profile, I would reject it too as long as there is good natural plan in place. Doctors too often prescribe what is not needed and never revisit to modify or eliminate. In the case of an artificial valve, I would say go with the thinner only because Western medicine doesn't know how to deal with anything else. That's why it looks at supplements and natural remedies with horizontal stares. Docs in Western Med don't get it. And they don't seem to want to.

Mon, Oct 28 7:38am · Does anyone with AFIB NOT take blood thinners? in Heart Rhythm Conditions

I had an artificial valve put in six years ago. While I was very nervous about taking on a life-long medication (warfarin), I did. None of the side affects that I had read about occurred. As I read more and as my heart aged (active 58-year-old) I realized the added value of a blood thinner. It protects against stroke from clots that can occur or an be broken loose by sudden and strong skips in your heart beat. I had considered an all-natural way of keeping my blood thin, but opted away from it because of the "reversibility" issue. I ride bicycles quite a bit. It is within the realm of possibilities that I can end up in the emergency room bleeding. Being able to reverse the effect of warfarin in order to conduct an emergency procedure, situation seemed like a good thing. Anyway, it hasn't been the drug that I feared. And given the increased risk of stroke as I age …

Tue, Oct 15 12:04pm · Heart Problems, Cardiac Symptoms, But Test Results Normal in Heart Rhythm Conditions

Jacob98898, I wish I could help. But one thing I can tell you is make sure you are getting enough electrolytes. Sometimes we take them for granted. The most important one to get is magnesium. You should be taking in about 430 mg a day of that particular one through food and supplementation — 1100 mg calcium and 4500 mg of potassium. Salt probably isn't an issue since it's everywhere. I was having serious irregular problems suddenly. While my cardiologists weren't willing to embrace the electrolyte thing, I started monitoring my diet and supplementing magnesium. Everything they couldn't fix got fixed. I wish they would have pushed electrolytes.

Mon, Oct 7 2:08pm · Tykosyn use in Heart Rhythm Conditions

We are in the same choir lifewisemap. I believe this drug is toxic to me. My body has always been sensitive to any drug. But I don't want to navigate yet another one since they all seem to be toxic to me. I was prescribed it because my cardiologist didn't know why I was having recurring Ventricular Tachycardias. And the drug is suppressing them. But my plan is to have an ablation and hopefully eliminate any need for a drug (hate all drugs). My Mayo visit went well last week, and if we can get everything arranged, I can have the ablation this month. Crossing my fingers. If an antiarrhythmic is a part of my longterm care, then I will seek out something other than flecainide.

You and I could have a long conversation about out toxic world. I'm convinced that my whole VT problem started with a near depletion of magnesium in my heart. Getting a doctor to listen to that …. Thank you for responding.

Mon, Oct 7 11:43am · Tykosyn use in Heart Rhythm Conditions

I recently was put on Flecainide (100 mg twice daily) and was hit with terrible side affects such as difficulty breathing and an uneasyness in my chest. I was very angry to find out my doctor (not Mayo) had not advised me on how to take this VERY powerful antiarrhythmic drug properly. When the side effects reached an extreme level, I got no answers from my general cardiologist. It was only after researching several pharmacy websites that I discovered their mistake. And here it is for everyone to consider and hopefully get answers.

Apparently Flecainide should be taken in two stages. There is the "loading" stage when you're establishing a "steady state." This is when concentrations in you body are at a level that dosing becomes merely maintenance. After nearly 10 days on the drug, I literally thought I was going to die. It was the end. What prompted me to take action on my own was the Sunday that I needed to pee almost every half hour. I'm a very healthy guy and figured my body was trying to get rid of something. And it was. Flecainide. I was reacting in all those terrible ways because my body had absorbed all it wanted and was telling me to shift to a maintenance dose. I cut my dosage down to 50 mg twice daily and now am resting easy at 25 mg twice daily. I still get side affects, but not nearly the level they had been and they seem to taper to nothing by the time it's time for my next dose.

I would recommend everyone read reputable pharmacy websites on all the medications they are taking. I have learned that doctors know little about ALL the effects of the medications they prescribe. This isn't a license to hate on doctors, but just understanding their knowledge has limits, and it's ultimately our responsibility to take care of our bodies. And that means reading.

Dec 16, 2018 · Pacemaker and medications; CardioMEMS HF device in Heart Rhythm Conditions

Has anyone ever had a cardiologist take Pacemaker Syndrome seriously or do they just look at you like you’re nuts — like they do me.