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Dec 27, 2019 · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Hi David, very glad to hear that your biopsy came back negative, but it sounds like you are waiting for the other shoe to drop sometime in the future. In the last 9 years, I've had two different cancers. So, I've been looking into why I've been getting cancer to see if I can do something to prevent the next one. It seems sometimes that our bodies are like time bombs waiting to go off. My cancers are "not related", but what I'm beginning to realize is that all cancers are formed in pretty much the same way, damage to the DNA in our cells. I read a book recently by David Sinclair on aging called Lifespan. He talks about what happens to our cells as we age and there is a direct correlation to the formation of cancers. Consequently, as we age we are more likely to get cancer. He
discusses what we can do to make our cells healthier and subsequently less likely to be cancerous. He has a website at http://www.lifespanbook.com, if you want to see what he has to say.
I've discussed with my GP some of what he identifies as remedies for aging cells, and he concurred that recent research backs what he has to say. The two my GP supported was intermittent fasting and intense exercise for short periods of time (spurts of 20 to 90 seconds of intense exercise). Sinclair talks about some supplements but I'm not ready to try them yet until I know more. However, Resveratrol, found in red wine, is one of the supplements. So a glass or two of a good pinot or merlot might help keep you younger. Actually, the Linus Pauling Institute at Oregon State U has information on how Resveratrol helps prevent cancer at the cellular level.
So, I've decided I can wait until the next shoe drops or try to do somethings that might prevent it from happening. You might try it.

Nov 13, 2019 · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Yes, it is. I had to wait over a week to get biopsy results. Longest week of my life. Things moved fast after Mayo accepted me. Met with my doctor less than a week later.

Nov 13, 2019 · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Yes, I spend about 6 months in Phoenix area and have an appointment twice a year to check PSA and bone density (for Lupron treatment). Those are things that you can have checked locally and share with them. I share my results with Oregon doctors. They have patients from all over the world. I'm sure they can accommodate the distance.The only issue would be if your PSA starts rising again. They would probably have you do a choline C11 pet scan to find any cancer cells in your body. If you have more cells, treatment would follow.
The staff at the Phoenix Mayo are great to work with and are open to whatever you want. They're probably comparable to Rochester's staff. The best of luck to you. After you make your decision, don't look back.

Nov 12, 2019 · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Hi Dave, I'm also from Oregon, Salem area, and my 8 core biopsy did show a sample with Gleason score of 8. Based on readings, I also determined that being treated at a cancer center would give best chance of success. In Oregon that would be OHSU, but they didn't perform Proton beam radiation, my choice. So, I chose Phoenix Mayo Clinic. We happen to have a winter home there, but they have apartments available for no cost to patients. We met some patients who stayed there and seemed a good option for people from out of town. Most centers will help find housing. I checked with Seattle and Loma Linda who had staff to help with housing. Radiation treatments can take up to 9 weeks so housing is necessary. My treatment was 4 weeks and Mayo has done some trials with 5 treatments over two weeks that show good results. Number of treatments depends on your diagnosis. Those who I met with longer treatments had the cancer spread outside the prostrate. They have a team that reviews your data and recommends treatment option.

Nov 10, 2019 · PSA numbers: Questions about new treatments in Prostate Cancer

Hi Dave, you are where I was a year ago. I was looking for the best treatment with the least amount of side effects. My Urologist gave me a book by Dr Patrick Walsh from John Hopkins that went through all of the treatment options. Walsh wasn't too keen on targeted Ablation because of the chance of missing cancer cells in the prostrate. He felt the Ablation of the entire prostrate had serious effects on the urethra and rectum. He was speaking from several years ago and the procedure may be better now.
I chose the proton beam therapy, because the men I talked to had few side effects, except irritation of the urethra during treatment. However, my Gleason score was 8, and
my radiation oncologist said by adding hormone therapy to the radiation increased my changes of survival by 20 per cent. I've talked to several men who had the proton beam therapy without hormone therapy and they resumed normal activity after treatment. There is a group that formed out of proton beam treatment at Loma Linda Med Center called the Brotherhood of the Balloon. They have a web site you can access for more information.
You actually have better diagnostics then I had and a radiation oncologist can tell you what would be your treatment option. You may have gone down this road already.
Hormone therapy shrinks the prostrate and can kill cancer cells that may have gotten in your blood stream. I just saw a study where they found cancer cells in blood of 30 of 37 men who had a prostatectomy. Their Gleason score was 8-10. My concern is killing all cells, even if I have to live with Lupron side effects for 18 months. I believe that up to 40 per cent of men treated can get recurrent cancer.
The good news is that surgery and radiation treatment result in same survival rates, so it does come down to what you are willing to live with that goes with the treatment. There's a book written by Robert Marckini, You Can Beat Prostrate Cancer, where he used a table of pros and cons for different types of treatments. It might help. His is a little old and may need
updating.
I wish you well. I know how hard this is.

Nov 8, 2019 · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

Dave, since you have had Genomic testing, you might want to take a look at this video on treating prostrate cancer focusing on biomarkers. It was produced about 4 weeks ago. https://www.practiceupdate.com/c/90568/67/11/. Practice Update comes out about weekly and has one edition just focusing on prostrate cancer. It is meant for medical professionals and can get pretty dense and beyond me, but I found this video very interesting. The report indicates that PARP inhibitors have been successful in treating some forms of prostrate cancer caused by breaks in targeted parts of our DNA. It also has been successful in treating other forms of cancer, including breast and pancreas, also caused by breaks in the same parts of the DNA. I've only recently become aware of the importance of Genomic testing after reading the book Lifespan by David Sinclair. It is possible that in future treatment of cancer might be determined by what part of our DNA had the breaks that caused the cancer. Hope this is helpful.

Oct 14, 2019 · Video Q&A about Cancer and Genetics in Cancer

I was diagnosed with Prostrate Cancer one year ago and received Proton beam therapy and Lupron injections over 18 months, which is pretty standard practice. I just saw a video on the use of PARP inhibitors with a diagnosis of mutation of certain genes. This sounds like a break through in treatment. Do you see more analysis of Gene mutation in diagnosis and treatment for cancer?

Oct 9, 2019 · PSA numbers: Questions about new treatments in Prostate Cancer

I just watched the Q and A on prostrate cancer from Mayo Clinic posted on Oct. 3. It has a lot of useful information about psa testing, biopsies, treatment options, side effects, and reoccurring cancer. I wish I had seen this video when I was diagnosed with cancer a year ago. I discovered that my local urologist didn't use the most current procedures in my diagnosis. It reinforced my decision to seek out a research hospital like Mayo to pursue my treatment. They followed some procedures in my diagnosis that my local doctor left out.
My Mayo radiation oncologist also used a treatment that included proton beam radiation with Antigen Deprivation Therapy that increased my survival chances by 20% over just radiation. By the way, you can go on the American Medical Association web site and register as a patient and access their reports on prostrate cancer. I used the site to verify my radiation oncologist's treatment choice. Unfortunately, the report indicates that many doctors don't use that treatment option for advanced forms of my cancer (Gleason score of 8+).
I think my anxiety level would've been a lot lower, if I had known that the medical staff were using the most recent knowledge to determine If I had cancer and it's extent. Also, what are the factors that determine the best treatment option.
The two main take aways I got from the Q and A were have an MRI before having a biopsy. It will not only tell if you have cancer, but also focus the biopsy. The second was the difference in the treatment based on age. My radiation treatment was appropriate for my age (73), but if I was younger, surgery would've been more appropriate.

Hope this is helpful.