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Autoimmune diseases, Chronic pain, Lung and airway disorders

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Aug 4, 2019 · No cause found for recurring right hemidiaphragm paralysis in Lung Health

Depending on which doc you talk to, yes, I fit the SLE category, though others say other autoimmune processes.

Mar 5, 2019 · Paralyzed Diaphragm in Lung Health

Here is a case series from NIH on long term impacts of the procedure https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2996377/

Mar 5, 2019 · Paralyzed Diaphragm in Lung Health

"Diaphragm Plication" I believe is the name of the procedure….

Mar 5, 2019 · No cause found for recurring right hemidiaphragm paralysis in Lung Health

Just a brief update, I was diagnosed with "Shrinking lung syndrome" at my January Mayo visit….

Mar 5, 2019 · Shrinking Lung Syndrome and Autoimmune Disease like Lupus in Lung Health

It’s an extremely rare complication of autoimmune disease, most commonly with LUPUS, but also can be seen with Sjogren’s, RA, and others… Just diagnosed this past January and exploring what potential treatments are out there. I was put on oxygen for sleeping when the diaphragm weakness/paralysis causes the most problems. High dose steroids during the attacks seems to be the standard treatment, but not much is known about how to prevent worsening. I’ve seen case studies where rituximab was used too, but there are too few cases out there to be able to define a real treatment protocol. Anyone out there with any knowledge of this rare area?

Mar 5, 2019 · Paralyzed Diaphragm in Lung Health

I can say that the conductivity testing for the phrenic nerve that I had done at Mayo was a simple and mostly comfortable procedure. I deal with "recurring right hemi diaphragm paralysis" and they did the test to see if the nerve itself was intact and operating appropriately (It was for me, so the problem for me is the muscle, not the nerve).

Jan 4, 2019 · No cause found for recurring right hemidiaphragm paralysis in Lung Health

Will do, and thanks! I keep hoping I will run into someone with similar symptoms who can give me a lead to follow.

Jan 4, 2019 · No cause found for recurring right hemidiaphragm paralysis in Lung Health

I believe this will be my fourth trip to Rochester.