Member has chosen to not make this information public.


Member not yet following any Groups.

Posts (1)

Tue, Jan 29 9:14pm · Q & A: Ricky Safer, CEO of PSC Partners Seeking a Cure in Primary Sclerosing Cholangitis (PSC)

I am hoping to attend the conference this year as it’s closer to home. I joined the PSC registry when it began. I have also participated in some of the studies. My family is one of the exceptions to the disease without rules…my aunt and brother both were diagnosed with PSC. I was diagnosed in 2009.