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Mon, Feb 4 8:37pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Phyllis,
Good to hear from you. I take liquid (refrigerated) probiotics ie live not freeze dried I just reckon they are more easily biologically absorbed! I take capsules when away the more more per billion per capsule and I only go to Whole Foods for them.
When I first took the ethambutol I had my eyes tested every four months for year. It was expensive but it to give me a baseline for what I can tolerate . I was fine no problems. I haven't had my eyes tested and I'm not going to unless I have to be on the big 3 for over 6 months thi time. Last time I was on the big 3 for a year every other day. As much as it's the optic
Nerve that can be affected it's the possible colour differentiation problems that can be more probable. Only we are all different. Id say check it out with the eye exams to be conservative one can't loose!
Hang on there!

Sun, Feb 3 8:43am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Phyllis this is Deborah I'm now on my third month of if I ethambutol rifampin Azithro , i'm 57 and originally started taking the rifampin early in the morning only I've changed my routine because I think that's stressful on the body no I take the ethambutol and Azithro with food late morning and then a couple of hours before another middle of the day meal I take the rifampin I don't empty stomach. This way I'm already focused on the day and sufficiently distracted in a conscious way and it tends to stop me from getting anxious at all in reference to the medication side effects . I drink lots of water probiotics and I am very careful not to wear myself out. It's not easy but it's not impossible. Whoever thought I'd be giving these kinds of suggestions Im still being aware of getting needs met and pacing myself I hope it this helps one day at a time. Surround yourself with as much comfort as possible!

Dec 6, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Deby,
How great you recovered. I needed to hear.. Im on a second round of antibiotics after a year of gbeing off them. Only this time the dosage is daily at 1650mg daily. I feel so weak! Did you feel weakened at all. I think the ethambutol makes me a bit less coordinated physically and decreases concentration. Im working part time and keeping that way for a while. Are you willing to talk by phone? I dont want to be in anyway intrusive. Only Its so good to hear positive news! Thanks, Debminuet

Dec 6, 2018 · Extreme fatigue in MAC & Bronchiectasis

Hi, I'm new too and getting going with the learning curve. Yes fatigue certainly is a symptom more so when other medical issues are present. Ive found that building up on exercise and moving around helps. If you are positively diagnosed I would go on it in a jiff to try to nip it in the bud if you can. Take care.

Dec 4, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

Thankyou so much. The milligrams are so high twice as high as when I went on them before! And, so Im more concerned about side effects. Do let me know your thoughts on this if you can?

Dec 4, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

Hi there everyon
I was treated for MAC two years ago 3 x weekly, Ethambutol/Rifampin/Azithromycin Ive recently had scan with buds showing and have symptoms and am now prescribed to take this every day and Im scared. I didnt have side effects last time but taking this every day is scary. Does anyone have any experience of daily meds as such???