Sue, its so good to hear from you a 'good new'. I have two pulmys one who is far less experienced with mac than Dr Landa my other pulmy. THe reason for the decline is simply because of the difficulties of staying on it. I actually have a new growth (the hope its a mucous plug) only Im not feeling hopeful. Im scared. Im scared it would mean another biopsy to make sure its mac an not something else. This is why I wonder to get a work up at the Jewish Federation.
I hope i can in a way so to be completley thorough. And I tend to get respiratory infections in the fall and winter so I may decide to do what you brought to my attention and go off them til the Fall only I need to check with my doc The body does and can become resistanct and inconsistency off/on with the big 3 is not the way to go. So lots of decisions to make.
I think your very strong dealing with the pain and I hope the tinnitus has lessened or lesseneds in time. I hope to hear back soon,
Thankyou so much,