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Posts (7)

Jan 5, 2019 · Big 3 and weight loss in MAC & Bronchiectasis

Initially I lost my appetite and I wasn't understanding why. I started drinking tumeric and ginger tea with lemon,medicinal strength manuka honey, coconut oil and black pepper. I also started taking a probiotic with 12 strains/10 billion active cultures. Also includes a probiotic. The name of the product is Trunature. I also take liquid vitamins and a sublingual B12. I also take CBD oil. My appetite is much better.

Dec 12, 2018 · Extreme fatigue with MAC in MAC & Bronchiectasis

@hydrang3a I totally agree. If I had know about MAC (I have bronchiecstasis) I would not have been messing around digging up dirt and messing around with potting soil (research has proved that MAC is definitely found in potting soil).

Dec 7, 2018 · Extreme fatigue with MAC in MAC & Bronchiectasis

OMG!!! I UNDERSTAND TOTALLY. I thought that my time to pass out of this life had come until I found out about the side effects of these drugs. I take Rifampin, Azithromycin and Ethambutol 3 days a week. My days off the drugs are better and I try to get as much accomplished as I can.

Dec 2, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes good luck to us all. I am so pleased that I stumbled across this site. I felt so alone dealing with my issues. Knowing that there are others going through the same problems makes me feel less doomed.

Dec 1, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for your sound advice. I will surely follow it since you have already traveled down this path.

Nov 30, 2018 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was diagnosed with MAC last month. I am on meds 3 times a week. Sometimes I feel terrible. So tired and sleepy. I don't know how I'm going to do this for a year.