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Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Incase anyone wants to know. I got my skin biopsy evaluated at Therapath.
Rt Calf 3.92 >3.8 abnormal 3.8-4.5 low normal
Rt Thigh 3.92 >6.2 abnormal 6.2-6.8 low normal
Also I am 42 years old.

Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I know the feeling of doctors looking at you weird. My Family doctor has been the one who has helped me the most in getting tests ordered and talking with the other doctors. All my doctors are at Medical University of South Carolina.

Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Neuropathy is no joke. We understand what it's like but people who have not experienced it dont understand to the extent of how debilitating it can be. I wish they could find a cause for why we have it so we can fix the issue to get the neuropathy under control.

One thing that helps me deal with the pain is to stay positive and try to keep a smile on my face. Also my almost 4 year old little girl and my very supportive wife helps.

Nov 29, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you, I appreciate it.

Nov 28, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hello everyone. I am new here. I have just been officially diagnosed with severe idiopathic small fiber neuropathy. I had the biopsy done as well and multiple of test including blood and urine test to try and find a cause. They were not able to find a cause. I have it in my feet, legs, midsection including most of the groin, hands, arms, and face. Always have tingling in those regions except my upper legs and groin I am numb. Hand and feet are the worst when it flares up. It's like I am repeatedly being stabbed with knives nonstop for the length of the flare up. The flare ups last anywhere between 10 minutes to many hours.

I have been having that feeling for years but I have also has cervical and lumbar issues which both required surgery. Had fusion of the c5-c7 and anterior/posterior fusion of the L3-S1. These did not cause the small fiber according to the doctors. I have to go for my sixth surgery in 6 years in a week and a half to get a spinal cord stimulator for the lumbar region, it does provide some help with the pain in my feet. My bladder is shot and had a cystoscopy and video urodynamic study and my bladder muscles barely function. I have to go for the trial of interstim stimulator to see if it helps. I also have to meet with the pain specialist to discuss long term for dealing with the pain. Gabapentin does not work and I get bad side effects.

Sorry for going on and on.
Thank you for listening (reading).
Dustin