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Tue, May 12 5:01am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
@lilypaws Thanks Lily, and best of luck to you — hope it goes well in June.
Mon, May 11 7:57am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
Hi everyone, I hope you are all safe at this time. I'm thinking of all of you and send my prayers, Annie
Mon, May 11 7:55am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
Thinking of everyone — hope we're all getting through this awful time safely. Best of luck, Annie
Sun, Apr 26 11:53pm · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
@tinaesims Hi Tina. If you are on Rifampin or Rifabutin — as part of your NTM treatment — your thyroid counts can go low, sometimes very low. This does happen to some people. Some other people don't have much problem.
Rifampin particularly interferes with Levothyroxine meds, reducing their effectivesness, so you can become low thyroid. (Technical info: Rifampin can be a moderately strong to strong CYP3A4 Inducer in interactions with Levothyroxine, and with Rosuvastati,n etc. Doctor could check Drugbank.com for more information about these interactions).
This certainly happened to me. Rifampin reduced the effectiveness of the Levothyroxine I take, so I ended up with low thyroid T4 and high TSH. It also flattened the Statins I was taking, so I ended up with high cholesterol (high lipids) all of the time.
In the end the Pulmonologist took me off Rifampin and replaced it with Clofazimine instead.
All the best, Annie
Sun, Apr 26 12:45am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
@lilyoaws Thanks very much Lilypaws (Lily?) and you please look after yourself too. All the best with the surgery. We'll all help each other get through this. Annie x
Sun, Apr 26 12:38am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
@ginak Thanks so much Gina. Lots of people on this site have more difficulties than me — so it's all no biggie, really.
True — the food deliveries continue to be trial and error. It's really hard to tell what size things are. (So I ended up with huge meat trays when they looked so small in the photo! And giant bags of blueberries for my tiny freezer! Just crazy).
Yes! My glasses fog up heaps too when I wear a mask — laugh. Thanks so much for the tip — we'll see, but a stray tissue will also be good for a laugh anyway. You are such a balm, Gina. Please look after yourself. Annie x
Fri, Apr 24 4:08am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis
@ginak Hi Gina. Yes I've watched how bad it got in Italy and other places in Europe, then New York and other parts of the USA. I've been thinking about and praying for people where you are Gina. So sad to hear about it all — it's truly frightening, and truly sad.
It's awful to think that in many places this has only been the 'First Wave' of this virus. It could come back again later in a 2nd Wave, or 3rd, etc. Who knows if Australia and New Zealand will still be doing okay then.
For me it's almost like I was living in New York too because I can't leave the house at all. I've been in lock-down for months now because I have 2 immune deficiency diseases — neutropenia and low globulins, I live alone, and nobody can come into my living space. I'm retired and don't work now. It get deliveries to the doorstep and wash everything down, and I have telephone and Zoom or Skype medical appointments. So I'm getting very 'stir crazy' (laugh). Thank God for this forum site.
I sypathisize so much with all of you in the US and Europe. Annie x