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Sat, Jan 4 3:00am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Good luck to everyone in 2020! Let's hope for the best
Annie

Sat, Jan 4 2:58am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Heather @heathert, the research on iron supplementation and mycobacterial growth has been contradictory. More of the research has been done in Africa with populations regularly having high iron loads in their diets, and even overloading of dietary iron on a frequent basis. in those studies, people tended to have poorer outcomes with mycobacterial infections.
Some other studies have found conflicting results — iron supplementation even during TB had no effect on the mycobacterial burden in the lungs.
However, recent research with other populations found that if you routinely have low levels of iron in your diet, and have had some degree of anemia — for example many vegetarians — then supplementation with iron has no effect on increasing mycobacterial growth.
So if you continue to be a vegetarian, you should be safe to take iron supplements.
(See "Iron Supplementation Therapy, A Friend and Foe of Mycobacterial Infections?", R. Agoro and C. Mura, 2019 — Pharmaceuticals 2019, 12, 75; doi:10.3390/ph12020075 http://www.mdpi.com/journal/pharmaceuticals).
Hugs, Annie

Dec 21, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Have a good and safe Christmas and New Year everyone, and wishing you all of the healing you need
Annie

Dec 16, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Heather @heathert Did you order your Pari Eflow from the USA?
Hope you're good — you've finished the meds, right?
Hugs from Annie

Dec 3, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@boomerexpert I don't know, sorry — I haven't tried it yet. But it's worth looking into it.

Dec 2, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Kathy @kathyhg and @boomerexpert. The study I read was preliminary research and the single dose of vitamin D3 would translate to around 100,000 iu only ONCE every 2 or 3 months (= 2.5 mg or 2,500 mcg once every 2 or 3 months).
Safety and any side effects would need to be investigated further, but if it's a single dose taken once every 2 or 3 months it seems the single dose can safely be higher than that (see for example: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4128480/).
You can get doses of 10,000 iu in capsules or tablets online. But you should probably only do this with guidance from a doctor, I think.
Here's some relevant studies:

https://www.ncbi.nlm.nih.gov/pubmed/17463418/

https://www.ncbi.nlm.nih.gov/pubmed/23331510

https://www.ncbi.nlm.nih.gov/pubmed/21419266

https://www.ncbi.nlm.nih.gov/pubmed/21133662

https://www.ncbi.nlm.nih.gov/pubmed/20067648

https://www.ncbi.nlm.nih.gov/pubmed/20557314

https://www.ncbi.nlm.nih.gov/pubmed/22589721

https://www.ncbi.nlm.nih.gov/pubmed/18602003

https://www.ncbi.nlm.nih.gov/pubmed/19748462

After I finish my TB meds I want to try it to help my immune system. I was planning to look into it more then.

Nov 29, 2019 · Anyone taking Clofazamine??? in MAC & Bronchiectasis

It's November/December 2019 now Gayle @gaylewroc. How are you going on the Clofazimine? And the Arikayce?
Hugs from Annie