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Tue, Jan 22 5:53pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I didn’t ever tell you how sorry I was for your diagnosis and recurrence. This clear cell is not FUN!! My doctor at Oregon’s OHSU MEDICAL CENTER has talked to me about a vaccine ( I think it’s called vacivir)!trial that is very promising, but I don’t have a large enough tumor to qualify. Maybe it would work for you.

Sun, Jan 13 1:31pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

How do you handle the emotional end of all this. Support groups? Counseling?

Dec 27, 2018 · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I too am in the same place you are. I was diagnosed with stage 1A OCCC in Feb. 2018, went through 6 rounds of Taxol and Carboplatin. Although my numbers are good and CT is okay, my doctor removed what she call a granuloma from my vaginal cuff. The pathology came back Clear Cell cancer. They have sent it in for Molecular Testing. Right now I just feel helpless. I don’t know where to go for treatment that has actually worked. If anyone has suggestions or has been through this, please respond.