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Nov 17, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

My name is Nikki, I'm 46 years old and I was recently diagnosed with idiopathic peripheral neuropathy with symptoms of numbness and burning pain in both feet. In February of 2018, it started with a little numbness at the base of a couple toes and has since spread to constant numbness in both feet. My primary care physician was as thorough as he could be (blood tests, EMG, etc.) and because I have multiple autoimmune diseases (vitiligo, IBS, eczema & hypothyroidism), he ruled out MS, Lupus along with Lyme disease, diabetes and probably other diseases which I just can't remember He prescribed Neurontin, starting at 300mg 3 times a day with the goal of 900mg 3 times a day but the side effects (fuzzy brain & blurry vision being the worst) were too much so I topped out at 600mg three times a day. I was also prescribed Elavil (75mg) to take at bedtime to help me sleep better. There was no relief, no change in my symptoms with that medicine, so he then referred me to the Cleveland Clinic where I met with a neurologist in October of 2018. He ordered many blood tests, an EMG, a skin biopsy, a vascular ultrasound and I had an appointment with an endocrinologist to make sure my hypothyroidism was not the cause. He also started me on Lyrica with the end goal being cutting out the Neurontin entirely due to the debilitating side effects and having Lyrica take over. All tests came back normal so now they want to refer me to a "functional medicine doctor". This whole situation has been physically and mentally draining. I have been a stay at home mom for almost 11 years but had recently gotten back into the workforce with a legitimate work from home position which made me so happy. However, I lost that job because I can't retain new information and I can't seem to think straight anymore. It's almost like my brain is misfiring where I know I should know how to do something but my brain is just not getting there. I will be honest…..I have become extremely depressed (not suicidal) since learning all the tests from the Cleveland Clinic came back normal. My symptoms have continued to worsen with no clear diagnosis. This Tuesday, I am going to see a psychologist who helped me deal with my grief when both my parents passed away from cancer back in 2005 and 2007. I'm sure this is all way too much information but I wanted to paint as clear a picture as possible. I really need to chat with and learn from others who are suffering from the same issues as I am.