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Posts (23)

Thu, Jan 31 8:20pm · eyes my "Blurry" vision hasn't went away in MAC & Bronchiectasis

I also started having pulsing vision disturbances in the upper left area of my left eye. My infectious disease doctor said it was definitely from the Ethambutol and my eye doctor said it wasn't. I was taken off the Ethambutol and my vision did come back slowly after about two months.

Thu, Jan 24 7:45am · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

This is interesting. I also lost my son several years ago. I was and am still very sad. It is when I started getting sick with MAC.

Wed, Jan 9 5:50pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have not had a bronchoscopy yet. I feel very nervous about it. Please describe your experience with your bronchoscopy.

Wed, Jan 9 4:10pm · Hypogammaglobulinemia in Autoimmune Diseases

@kananab thank you for replying. I am currently being assessed at UCLA for a MAC infection of the lungs. They are also going to start treating me for my CVID. They think I may have more things going on in my lungs besides the MAC. I also have Bronchiectasis. They want to change me from IVIG to SCIG. We are having problems with that because there is a blood shortage. I am waiting for tests. I am having a hard time producing a sputum sample. Finally somewhere to find out more about CVID.

Dec 23, 2018 · Daily dosage of Rifampin Ethanbutol and Azithromycin in MAC & Bronchiectasis

My infectious disease prescribed Florastor probiotic. It is not a bacterial type of probiotic so it is not as much affected by antibiotics. It does help, but It does give me gas. My gastroenterologist does not like me taking any kind of probiotic; maybe because of my Immunodeficiency. So I am confused whether I should or shouldn't take them.