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Sat, Mar 21 12:27pm · Just found out I have mycobacterium abscessus! in MAC & Bronchiectasis

Original diagnosis was Gordonae that was 18 months ago, now the new diagnosis of adscessus. I am reading that adscessus is a lot more fast growing. I was on the "big 3" for the 18 months, my dr. took me off 6 weeks ago. I did not agree with my local dr. so I went back to Mayo and found out about the new diagnosis. I will not find out what treatment they will have me on until April 3rd when I return back to Mayo.

Sat, Mar 21 12:23pm · Just found out I have mycobacterium abscessus! in MAC & Bronchiectasis

Thank you so much, talking to others really helps

Fri, Mar 20 1:32pm · Just found out I have mycobacterium abscessus! in MAC & Bronchiectasis

thank you so much for the info

Wed, Mar 18 3:29pm · Just found out I have mycobacterium abscessus! in MAC & Bronchiectasis

AM VERY SCARED HAS ANY ELSE HAD THIS STAIN OF THE MYCOBACTERIA. WOULD LOVE TO TALK WITH SOMEONE WHO HAS GONE THROUGH THIS!!!

Jul 26, 2019 · Losing weight due to MAC in MAC & Bronchiectasis

I only wish I could lose weight, I have been on the "big 3" since March 1, 2019 and am gaining weight and not eating more. I have a lot of swelling too.

Jul 23, 2019 · Your Tips on How to Get Off to the Best Start with a New Specialist in Visiting Mayo Clinic

I have my first appt. with Mayo, Jacksonville on Aug 5. for mac but since I made the appointment other problems have developed. Does anyone know if they can handle my other problems? for example, I am having problems with my Pancreas now that I have been on the "big 3" for 6 months. and my site is getting worse. I fill like I am going around in circles not knowing what kind of doctor to go to.

Jul 19, 2019 · Starting Arikayce - nervous in MAC & Bronchiectasis

I have had MAC for 6 months have been getting treated locally here in FL. am going to Mayo, Jacksonville next month. Hoping they can do more than locally. I am so tired all the time and no energy at all. Does anyone else have these problems.

Jul 19, 2019 · Starting Arikayce - nervous in MAC & Bronchiectasis

Thank you for the information. The only field I fit into is female gone through menopause, got mine at age 69 and have had MAC for 6 months now. I live in Florida.