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Tue, Feb 26 3:13pm · New to Mycobacterium Gordonae HELP needed in MAC & Bronchiectasis

Has anyone out the had Mycobacterium Gordonae?? I understand this is rare and would like to connect with someone that has been through this. PLEASE share.

Mon, Feb 4 3:39pm · New to Mycobacterium Gordonae HELP needed in MAC & Bronchiectasis

Thank you for the info tydrell

Sun, Feb 3 4:00pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

ty for your reply tdrell , I am the one with M. Gorgonae my doctor said that I need treatment because the infection is eating holes in my lung

Sun, Feb 3 1:39pm · New to Mycobacterium Gordonae HELP needed in MAC & Bronchiectasis

Thank you for your reply, I have not been out west , my doctor did a bronco and sent samples to the Bureau of Public Health Lab in Jacksonville, FL they tested for 6 weeks a AFB Culture with a acid fast Bacilli Culture and came back with the answer as Gordonae. I just had a ct done last week and was told I am having holes in my lungs from the organism . So confused. OH MY

Sat, Feb 2 4:50pm · New to Mycobacterium Gordonae HELP needed in MAC & Bronchiectasis

WHAT??? who is he and where is NJH. My Gordonae is eating holes in my lung

Fri, Feb 1 7:55pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

would love to more about phages and what they are and what they do

Fri, Feb 1 3:07pm · New to Mycobacterium Gordonae HELP needed in MAC & Bronchiectasis

I just found out 2 weeks ago what my diagnosis is. Doctor did another ct and got results today. Was told that this is causing holes in my lungs. Has anyone has this problem I am scared to death and don’t know what is going to happen to me. I am going to see a infectious disease doctor local and then I dont know what. The fear of the unknown just makes me want to stop my life and run away

Mon, Jan 28 6:11pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

My doctor says they are good and is closer to my home, why?