Has anyone out the had Mycobacterium Gordonae?? I understand this is rare and would like to connect with someone that has been through this. PLEASE share.
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Sun, Feb 3 4:00pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
ty for your reply tdrell , I am the one with M. Gorgonae my doctor said that I need treatment because the infection is eating holes in my lung
Thank you for your reply, I have not been out west , my doctor did a bronco and sent samples to the Bureau of Public Health Lab in Jacksonville, FL they tested for 6 weeks a AFB Culture with a acid fast Bacilli Culture and came back with the answer as Gordonae. I just had a ct done last week and was told I am having holes in my lungs from the organism . So confused. OH MY
Fri, Feb 1 7:55pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis
would love to more about phages and what they are and what they do
I just found out 2 weeks ago what my diagnosis is. Doctor did another ct and got results today. Was told that this is causing holes in my lungs. Has anyone has this problem I am scared to death and don’t know what is going to happen to me. I am going to see a infectious disease doctor local and then I dont know what. The fear of the unknown just makes me want to stop my life and run away