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5 hours ago · CRPS Question: Itching in Chronic Pain

Hey I'm Renee. I was diagnosed 2 years ago. After I broke my ankle and was in a boot 4 8
months. Sounds familiar! My orthopedic surgeon couldn't understand why all the xrays show it was healed. But my foot was so swollen and purple. I forgot to mention I've had undiagnosed hives for the last 10 years. Seems too much to b a coincidence.

6 days ago · CRPS Question: Itching in Chronic Pain

Hi I'm Renee. That's a really weird story , because it's MY story to the T word for word. I had severe hives for 10 years. No 1 could find what was caused hives, face swollen, and anifalaysis no diagnoses then I break my ankle and get crps!!!!! And that's you and that's me. Where do you live?

6 days ago · Fibromyalgia in Chronic Pain

I so get it…it's like u r a burden and why should they waste their lives with you. Are taking something from someone when u know this will only end one way. Maybe I won't die , but I'm always in pain. So u take those few minutes when you are feeling good and do something amazing!!!!!!!! There is always HOPE left in pandora box.

6 days ago · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Sorry I didn't finish last night I go to therapy once a week for someone who doesn't live with all my crap every day. The crps also jumped into my arm it was horrible. I was in so much pain. So to be diagnosed although I already was, for spinal implant surgery you have to see a neurologist, rheumatologist, 2 psychiatrists and a pain management specialist. So you can get the stimulator that's crazy …lol. it works a on both arms and hands. There is a generator in my but that send electromagnetic signals to my spine. Its saved my hand. But it's not curable and it jumps from different parts of your body. It might, it might not. Stress and weather play a huge part in how I feel each day!! Keep your spirtsup!

Tue, Mar 12 8:02pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Well it started 2 years ago when I broke my ankle. My orthopedic surgeon kept saying it was healing great according to the xrays, but it was still very swollen and had a purple and blue tone, and it hurt like hell if any one touched it. He happened to know another orthopedic surgeon who studied complex regional pain syndrome at Jefferson Hospital. But now worked with the Rothman clinic. My doctor actually drove me 2 the other office to show the other doctor my foot. He immediately was like it looks like you have C.R.P.S. . Symptoms are severe pain in an appendage after you've broken or sprained something. It also turns bluish and purple. The pain is unreal. They call the skin " mermaid " skin.

Mon, Mar 11 9:51pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

It's called complex regional pain syndrome, and I've spoken to several people in the forum that have it. It's bizarre we have the same thing, but we've all have different stories. There are only 200,000 people in the us have been diagnosed, I can guarantee you that many more suffer from it but can't find someone to diagnose them. That's more terrible than me knowing what I have. And i am lucky enough to be in a state that has medical marijuana
It helps… though I'm a mom of a 16 year old, i took her to all the appointments so she would understand. This diagnosis crps/ or red is 1 of the 23 disorders on the medical marijuana list. Thanks for asking !!! I try and help any in the forum who need it or just needs a shoulder to lean on kinda…lol. I'll always be around for any chronic pain people who feels like no one gets it!!!

Mon, Mar 11 10:07am · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you so much for reading my post. I appreciate it. I just want people to know that they have other options then pain pills. I also journal every day to keep track of my pain and what sets iit's off. I'd encourage anyone to do the same. I also read as much as I can on spiritual help. Have a blessed day!

Sun, Mar 10 8:26pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I felt so horrible when I read your post. I know little about your disorder other then it's related to pressure points in your spine. I try and look up other people 's conditions, so I can be informed when talking. I'm Renee and also have a rare pain disorder that effects the whole body. I totally understand about the pain. Unfortunately mine is more like phantom pain. I feel it like a knife ripping me or burning me. Except there isn't anything there. I got a spinal implant that controls the pain in my arms and hands. But stress and weather mess with it bad. It's now in my spine. So my doctor put me on medical marijuana , just to ease the pain. I would recommend it for anyone in pain! It gives you a little lift and ease. It's legal I live in Philadelphia. I've used capsules and vape and I am not ashamed to get some relief and neither should you!!! Talk anytime you want, I'll always listen. Best of luck!!