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Tue, Mar 26 2:41pm · Living with Neuropathy - Welcome to the group in Neuropathy

I tried to 'unsubscribe'. I can't keep up with all the emails.

Fri, Mar 15 3:44pm · Living with Neuropathy - Welcome to the group in Neuropathy

Thanks–much appreciated. JB

Fri, Mar 15 1:01pm · Living with Neuropathy - Welcome to the group in Neuropathy

I will be moving to Bradenton, FL in a few weeks–does anyone know of any physicians that specialize in PN?

Mon, Jan 28 9:52am · Living with Neuropathy - Welcome to the group in Neuropathy

I have looked into pretty much every treatment available for PN. Chiropractors were notoriously expensive and not covered by most insurance. There are clinics that will do PRP therapy to the tune of eight or nine thousand per treatment with no guarantee and HBOT therapy at a few hundred a treatment and no guarantee. One of these days someone may (in my lifetime) develop a treatment to heal the nerves but I am not betting on it. There are too many charletins willing to take your money. When a reputable medical institution (Mayo, Cleveland Clinic, Hopkins) come up with a treatment I'll be first in line.

Mon, Jan 28 9:39am · Living with Neuropathy - Welcome to the group in Neuropathy

My God!!! That's $183 per session. When I checked costs in Tucson they wanted $100 which I thought was outrageous. You could buy a laser set up for a few hundred dollars if you want to try it. Good luck..

Sat, Jan 26 11:41am · Living with Neuropathy - Welcome to the group in Neuropathy

I tried low laser therapy–it was costly and did nothing. Have not heard of magnesphere therapy–will look it up. Have pretty much given up on treatment. Have tried most that are available, have had 2 MRI's and 3 EMG's. Have deteriorated over the last six years and have little hope for a cure in my lifetime. Seems there is little interest in research for a cure–with 2 million + people suffering with PN there would be more aggressive research.

Nov 13, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

I was diagnosed with PN about six years ago–slight tingling of the feet. Cause was alcohol consumption which I believe was an easy diagnosis. Have had several EMP's and MRI's over the years showing a continuing deterioration of the nerves in my legs. No pain but loss of balance and strength. PT has helped a bit but have seen a greater loss in feeling this last year. Have been looking into HBOT therapy, PRP and stem cell therapy but neither are covered by medicare and clinics I have talked to offer treatments but at a huge cost. Has anyone had any success with these or other therapies and if so where? The lack of mobility has curtailed my ability to do much these days. I am 77 yrs. Any info would be appreciated.