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Fri, Mar 22 12:21am · Uterine clear cell carcinoma in Gynecologic Cancers

So glad you got your decision about brachy sorted out. Tough decision but good input from your team. Sorry you had issues with meds. I have an intolerance to most opoiods which make me throw up so my pain relief is dicey at best. But IV pain meds worked. Plus I have renal insufficiency due to long term NSAID use so I can only take them sparingly. All this nonsesnse! I did have just two nodes removed which is called sentinel node biopsy. Have you started chemo yet? Are they suggesting chemo for you? It sounds like you are stage 1a? I am not familiar with the protocols for clear cell. I had some clear cell but predominantly my tumor was serous, so I am classified as serous. I remember the old joke about older people obsessed with their aches and pains, and boy, am I ever the poster girl for that. 😁 I had my surgery, chemo and treatment at Mayo, Rochester. Let me know how you are doing.

Thu, Mar 21 12:53am · Uterine clear cell carcinoma in Gynecologic Cancers

@hhereford please see my post to @bruges. Good luck on your surgery and staging. If you have any questions after your surgery when you are feeling well, please don't hesitate to ask.

Thu, Mar 21 12:53am · Uterine clear cell carcinoma in Gynecologic Cancers

@bruges Hi. I have the almost as rare uterine serous carcinoma. Surgery 7/2018, dx Stage 1a UPSC with LVSI. I had robotic radical hysterectomy, no cancer anywhere except the uterus and LVSI. Two sentinel nodes were sampled, no cancer. Easy recovery. I had 2 chemo with 3 brachy followed by 2 more chemo. Brachy was recommended due to my stage. The treatment is not terrible, pretty undignified, but everyone was so kind and respectful. I was VERY hesitant to have any radiation due to the side effects short and lon term, but after consultation with my radiologist I agreed. I have had very little short term side effects, diarrhea, which lasted only a few days. For me very tolerable. What sealed the deal for me is that local recurrence in the vaginal cuff is common even for stage 1a. Plus my gyne who did my hysteroscopy removed most of my tumor thinking it was a fibroid during the biopsy which puts me at additional risk. So get all of your questions answered so you can make an informed decision. With a very aggressive serous carcinoma I did not want to take a chance. Hope this helps. The chemo and brachy are the standards for 1a serous by the Nccn.

Mon, Feb 11 2:38pm · Recurrance of uterine cancer in the vaginal cuff in Gynecologic Cancers

After 3 rounds of brachytherapy I had diarrhea, but only 1 horrible painful day. It gradually went away. I did not have any lasting side effects so far, but I understand that some can develop years later. My bowel problems slowly resolved, but it is still a new normal for me. I am sorry that you are going through this.

Sun, Feb 10 8:27pm · Uterine Papillary serous carcinoma in Gynecologic Cancers

What was your staging and what course of treatments have you had? I am so sorry that you have to go through this.

Sun, Feb 10 8:22pm · Uterine Papillary serous carcinoma in Gynecologic Cancers

I am going to Mayo This Tuesday actually, for my 1st 3 month checkup. I was NED as of November but that was just after my last treatment. Welcome to our group.

Wed, Feb 6 4:54pm · Video Q&A about Cancer Immunotherapies in Cancer

I am so sorry that you had to go through this. I had an incompetent gyne who did not take my symptoms seriously and I was dx with stage 1a grade 3 serous endometrial cancer. As a result, I question everything.

Wed, Jan 23 7:19pm · Need Patient's Experience with Mayo Clinic. Is it worth it? in Visiting Mayo Clinic

I am on Medicare and received treatment for my rare cancer immediately after my local docs dropped the ball. Perhaps your condition is not rare?