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Posts (3)

May 30, 2019 · UCTD, low MCV, low MCH and low neutrophils in Autoimmune Diseases

My Rheumatologist diagnosed me with Undifferentiated Connective Tissue Disease in December. I am taking Plaquenil daily. My MCV and MCH have always been low for as far back as I can remember; however, my iron levels and ferritin are normal. Recently my Neutrophils have also dropped. Any ideas on what the heck is going on with me??? I’m miserable every day. My body hurts 24/7. I don’t feel the Plaquenil is doing anything.

May 30, 2019 · Undiagnosed Autoimmune with back pain, spasms, and stiffness in Autoimmune Diseases

I am so sorry this is happening. You aren’t alone. I would ask about having your spinal fluid checked. My grandmother had MS and her MRI was normal. Spinal fluid is how they found it. My ANA is also 1:320 and the rheumatologist has diagnosed me with Undifferentiated Connective Tissue Disease. I take plaquenil. I’ve been tested for Lymes too. The CDC states that so many bands on the test have to be positive for it to be ruled that someone has lymes. Look up the lyme crime. I’ve been on plaquenil since January and I don’t feel any different. To top it off I’m 32 and have a 2 year old to take care of. I’m not trying to talk about myself…just giving you info in my situation so maybe it can help you.

Nov 7, 2018 · Muscle pain, spasms, lightheaded, unable to concentrate, etc. in Bones, Joints & Muscles

Within the last year I had blood work done. ANA positive 1:160 and EBV antibodies showing past infection. Not sure if that means anything. Whole body bone scan with symmetric arthrosis in each joint. Doctor gave me anti inflammatory medicine and muscle relaxor. Does nothing. I had an MRI of my brain, normal. I also had an MRI of my spine. I have issues at C5-C6 and C6-C7, herniated disc and narrowing of the spinal canal. Spinal cord is NOT compressed. I had this done after my EMG/NCS came out normal but with brisk reflexes upper and lower extremities and Hoffman’s sign in my right upper extremity. I have severe muscle pains, I never feel good, I developed what they are calling plantar fasciitsi in my right foot (sometimes appears in my left). The arch of my foot feels like it is getting shocked. I had my first EMG in June and they said I had carpal tunnel. I don’t have a good grip and get horrible pain in my thumb and tip of ring finger. The second EMG I just had said no carpal tunnel, normal. I have really bad knee pain in my right knee. I constantly feel like my muscles are tight and don’t know how to relax. I will have episodes where my skin is extremely itchy. My left lower eyelid twitches daily. My right thigh will also twitch sometimes. My ankles hurt all the time. PLEASE give me some thoughts. I am a 32 yr old female. I have a 2 year old. The Rheumatologist has said I have mild osteoarthritis. My great grandmother had MS and Parkinson’s is on my mothers side of the family.