@derbyfever in some cases such as MCTD you can have symptoms of Sjogren’s, but not test positive. I suffer so many issues due to autoimmune diseases. I am headed to MAYO soon myself.
Also, I noticed you mention that you felt better on the IV. Do you know if anyone mentioned if any of your levels were low like magnesium? The story is too long, but I went through a horrific time with my Dad. He was sent to the ER and after two weeks was diagnosed with dementia. I knew this was not the case. It took me moving him to another hospital out of state and several months of me researching, to figure out that he has a defective kidney that wastes all of his magnesium. He had a lot symptoms that you mentioned. He couldn’t walk without falling he was actually having hallucinations. It was so scary that in the end it seemed to be so simple yet no one put it together. I’m not saying this is your issue, but i would have all of your levels checked. The only thing that his body can absorb is one particular brand of magnesium. It really is scary when we know it’s something yet we can’t find answers. Always be your own advocate and don’t give up! Hopefully you will find answers soon!