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Fri, Mar 22 1:27pm · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases
Fri, Mar 22 10:36am · Its just been two weeks, could this be Small fiber neuropathy? in Neuropathy
I can relate. My small fiber started in right foot, before i knew it was on other foot , up the calfs then felt in hands in forearms. Sometimes i feel burning in back of shoulder blade. Most of the time the discomfort is in my legs. Sitting at work irritates the condition. My hamstrings get super tight and pain and my calfs hurt. Burning in my feet seems endless at times. I dont have any loss of strength etc Thank God. Its more sensory pain related. I was having a real good stretch for 6 months and felt good. Pain was around a 2/3 at most. Recently i had a flare up and went back to 5/6 level. This happens, stress is no good for this condition. I notice when i dont get sleep or am stressed its at its worse. I was confirmed with the skin biopsy. Im in the idopathic group. Just went back to neuro and going back on the lyrica. Hope this can help so i can just have 2-3 hours a day without thinking about this or feeling some sort of discomfort.
Fri, Mar 22 10:25am · Its just been two weeks, could this be Small fiber neuropathy? in Neuropathy
im in same boat. Came back from neuro yest, they basically ran every test u can and ntg coming back. Only thing that did stand out my mercury was high. I know metals etc can cause toxic to nerves. It was at 15 , i did chelation and now at 4. I dont see any improvement.
Does anyone with small fiber experience twitching all over? It can be in my bicep then i can feel it later in my thigh sometimes various parts. Also my job requires some typing and mouse clicking. I have noticed lately i get twitching and some movement in my fingers as well My neuro does not seem concerned with this twitching. Does anyone else experience the same ?
Fri, Mar 8 5:19am · Does Small Fiber Neuropathy also cause muscle spasms? in Neuropathy
Your case sounds a lot like mine. I went through numerous tests etc. I even went to a guru who tested all my blood to check for imbalances. I did have a couple things off like low vitamin b but nothing that stuck out. I too had was very stressed before all my symptoms started. I was on a statin for high cholesterol for years before. He had me on lovastatin which was a old school one. I too told him to take me off to see if that was it , nothing changed after 6 months. I now have pain in both legs , hamstrings always seem super tight. I get burning in forearms. I also get twitching all over now. It can happen for like 3 secs in my arm then hour later in my leg. I had multiple smgs which were all fine. The twitching was making me nervous as was it affecting more than sensory ??? The doctors don’t see worried about it though , just part of the disease ? I don’t get like Charlie horse spasms if that’s what your referring to. I had a good run for like 8 months on a bunch of supplements and was on Effexor for the anxiety etc dealing with the grind of this neuropathy. The doctor lowered and tried to taper off the Effexor as I was doing great but after a month on lower dose I had a bad flare up now so I went back to taking the Effexor. Maybe it was working on the pain ? I go back to neurologist soon maybe I need to be on medication dedicated to the nerve pain
No problem. Hope it helps. The chelation therapy is to remove heavy metals from the body. Because i was found to have 4 x the acceptable level of mercury in urine test, they put a Iv in you and let the solution run through the body. Hopefully binds to heavy metals and toxins and excrete them. I did it 10 times, have to wait for the urine tests to see if it worked
Just joined this group. I was diagnosed with sfpn about 1.5 years ago. It has been a struggle. This is the first forum i joined to maybe share info/ get info on this disease. I was confirmed via punch biopsy in 3 locations. I saw a couple of top NYC neurologists who did every test and they all came back negative for the cause. I guess i have been put in the idopathic column. That did not sit well with me. I was recommended a real smart imunnologist/ integrative DR that took 30 vials of blood to dig deeper. I was found that my b levels were off despite taking b complex for a while. I was also found to have a lot of inflammation in my body as well, lower d&k vitamins and the biggest surprise was high mercury level via urine test. I immediately had large metal filling removed and started chelation therapy. The dr put me on metanx ( my buddy wasnt absorbing b vitmains) and about 5 more supplements. Vitamin D and K, R- Lipopic acid, Anti inflammatory (curcimin/boswanna/black pepper), high quality EPA and DHA oil, and coq10. Well i started to feel better after a little while. I even came off the lyrica, which wasnt helping. Pain was a 9 and after a while i was at a 2 and sometimes forgetting about my discomfort for longer stretches of time. I had a good 6 months like that with a small flare up recently but even that only gets to a 5 from a 9. Long story short is keep pressing on with your search. I prob will never know the cause, but i did find stuff that was out of whack and prob contributed to this condition. If you find a good DR and get things inline , your can prob get better and start healing the nerves. I still feel some pain at times but i can deal with this if it doesnt get worse. I go back in a couple weeks to recheck mercury level and som other things. Good luck and i hope i can get some more good info off this site and learn some more.