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Tue, Aug 4 5:42pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

@maryvallis512, I’m thinking of you as you prepare for tomorrow’s appointments. We are no doubt both in Rochester tonight. We are still waiting for the results of his endoscopic ultrasound biopsies done yesterday. Wishing you hope and a plan.

Sat, Aug 1 9:25pm · Packing for our trip to Mayo Clinic. What to bring? in Pancreatic Cancer

@mira24 Yes. Comfy clothes to lounge in and extra in case your stay is extended! Remember masks and extra days medications.

Sat, Aug 1 8:31pm · Packing for our trip to Mayo Clinic. What to bring? in Pancreatic Cancer

Good walking shoes, coordinating clothing in layers, cross body bag large enough for papers and reading materials Do you have hotel reservations? We are here now and expect temperatures to be cooler this week so plan accordingly.

Sat, Aug 1 11:52am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

Same for my husband. Initial evaluation was with his nurse practitioner, then scheduled further. I’ll be thinking of you.

Sat, Aug 1 9:45am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

May I ask who your appointments are with?

Sat, Aug 1 9:23am · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

My husband is the one who received the diagnosis, but the feeling of devastation you describe is familiar and understandable. No matter the treatments and outcomes, life will never be the same. We’re a year out from surgery at Mayo and six months of chemo. Now back in Rochester for tests after a worrisome scan. Let the emotions be for now, your action plan will soon occupy you, but you’ll be better prepared if you allow yourself to process your grief. You aren’t alone and your story isn’t done.

Mon, Jul 20 8:03pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

@marvinjsturing thanks for the update. I am very interested in how you continue to do. I hope you are able to make the most of these days despite the pandemic and that you are feeling tolerably well. Your numbers are interesting. We got the results of my husband’s PET scan today. There is an area at the surgical site that is apparently either a recurrence or simply inflammation. He was staged as IIA at surgery and has had this area which includes some fat necrosis ever since Whipple. But now the area is a little bit larger in area and the pancreatic duct is some dilated. His CA-19-9 is 9, two months ago it was 10 but it has never been outside normal range. CEA is normal also. So we’re in a waiting game before Mayo appts, as you are. I was interested in the radiation/chemo percentages. Thanks so much.

Fri, Jul 17 6:41pm · Pancreatic Cancer Group: Introduce yourself and connect with others in Pancreatic Cancer

@marvinjsturing I think we may have communicated in the past. I just reviewed your posts. I’m wondering how you’re doing, whether there is any news. My husband had his stage IIA pancreatic cancer diagnosis after a Whipple at Mayo for IPMN pancreatic cysts the end of August last year. He then had 6 months of Folfirinox chemo. We’re going back to Mayo the end of this month after a locally done CT and PET scan evidently shows something that is worrisome at the surgical bed. His CA-19 and CEA labs are within normal range but we haven’t met with our local oncologist yet to be briefed on the PET results. We don’t know much yet, only that Mayo has already called us and scheduled him for multiple appointments, EUS, surgeon, oncologist and with a radiation oncologist. So any insight anyone can share about Radiation after Whipple and Chemo would be appreciated. I obviously don’t know much at this point. I’m wondering what Mayo recommends, regular radiation vs proton, and on what basis. Hope you are managing and thanks!