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2 days ago · Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

@fiesty76, I love a version of blueberry ice cream – frozen blueberries mixed with a little non-dairy milk (almond or soy or coconut milk, a tad of sugar if needed, then refrozen. I thaw it a bit before sticking my spoon into this yummy concoction.

2 days ago · Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

@billagreste, @darlingtondoll, @colleenyoung, @fiesty76, and everyone else, I can't find my earlier post about blueberries, cranberries, etc, so just in case it really went down the rabbit hole I am reposting what I found out during my research for my renal cookbooks. Please forgive me if my first post actually is here somewhere and I'm repeating myself, repeating myself, repeating myself. . .

Blueberries are a good antioxidant and are low in the minerals ailing kidneys struggle to filter, phosphorus, potassium, and sodium.

Cranberries, either as relish or juice or extract, are a natural diuretic and a mild renal anesthetic and cranberries are thought to kill harmful creepy crawlies in the urinary tract. ("Creepy crawlies" is a good scientific term, no?)

Green tea is nephro-protective, especially from free radicals.

Drinking water is thought to be good for CKD but forcing a lot of fluids also can damage kidney tissue.

Kidney tissue does NOT regenerate. A good renal diet, a healthier B/P, better controlled diabetes – all can take some of the burden from failing kidneys and slow down CKD progression but not "cure" kidney disease.

Any one of the herbs or fruits or plants listed on the supplement ingredients label could lower SERUM creatinine but according to the experts, this doesn't necessarily equal better renal function, it means creatinine has been diluted in the bloodstream and drinking a lot of water can lower creatinine in the urine. In other words, taking certain herbs or supplements actually can skew lab results so that they do not accurately depict what's really going on renally. (So can time of day of the blood draw, which lab does the assay, and what else is going on in your life at time of draw.)

Juniper is considered by some to be nephrotoxic. Personally, I quit using it. Even cinnamon or ginger can have an adverse effect if too much is used. Same with turmeric. And many of the ingredients in the supplements also occur naturally in other foods so be careful not to wind up ingesting too much of a good thing.

I am NOT saying don't take the supplement. I'm merely sharing what kidney.org, daVita, medscape, and the NIH have said. If it works for someone, go for it. Just do as Colleen Young suggests and be careful. Do check with nephrology experts before taking supplements.

2 days ago · Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD) in Kidney & Bladder

Some experts advise against taking juniper as it is thought to be nephrotoxic. I stopped using it for that reason.

2 days ago · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Just general info:

Blueberries are a fine anti-oxidant and are low in the not-so-kidney-friendly minerals phosphorus, potassium, and sodium.

Cranberries are a natural diuretic and a mild urinary tract anesthetic, good for kidneys.

Drinking more water will lower SERUM creatinine levels but basically does not alter renal deterioration.

Tea, esp green tea, also can limit free radicals and protect the kidney though drinking too much can have an adverse affect.

Eating blueberries and taking cranberry supplements (or drinking cranberry juice) and taking green tea are hall healthy choices for CKD patients and might even slow CKD progression.

The above statements are derived from studies by DaVita, Hindawi, medscape, kidney.org, and the NIH.

5 days ago · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Haven't posted much due to dealing w/shingles and yeast infections and a drop from stage 3 to stage 4 CKD but have managed to stay in my apartment since before the stay-home measures were recommended partly because I'm pretty much homebound to begin with and partly because I felt so awful. I don't have tele-health capability but fortunately I was given my docs' personal emails and also can address issues with them through patient portals. Took photos of shingles and subsequent yeast infection areas and emailed the pix so neph could prescribe meds and treatment. Both pcp and neph nurses call frequently to check on me and I very much appreciate how my care team members go out of their way for their patients.

The town I live in is pretty much shut down. Even our pharmacies are operating on a closed-door basis – local docs fax scripts and someone picking up an Rx goes to the door, phones the pharmacy from outside the building to let store personell know s/he has arrived, an employee comes to the door, masked and gloved, opens it a crack to hand the electronically paid-for prescription to the customer. Similarly, for customers too ill or disabled to physically go to the pharmacy, delivery drivers will bring the medicine to the person's door wearing mask and gloves. They sanitize the delivery vehicle and anything in it which could have been exposed after every delivery.

Handicap transport employees and regular route bus drivers sanitize at least once an hour, handivan drivers after every drop-off. It makes getting somewhere quite time-consuming but no one here is complaining that I know of.

Since I used to cook for a hay crew (on a wood stove) and for a hubby, a bro, a dad, 6 kids and their friends, I'm incapable of making anything less than 6 to 8 servings, no joke! So of course I always freeze extra meals to have on hand for emergencies. Thank goodness for the hay crew experience because I'm going into week 6 with shingles and their complications and have barely enough energy to microheat something already cooked for a quick meal.

For some time now I have grocery shopped online at our local Hy-Vee and the store delivers whatever I need. They carry a wide range of vegetarian and vegan foods and a multitude of kidney-friendlies. I made it a habit to order 2 of an item even if I only needed one. Just in case. . .

I'm old enough to remember outhouses and corncobs and Sears catalogs. And before there were disposable everythings I used and washed cloth diapers for my children as well as cloths for feminine hygiene. It's not a lot of fun laundering used toilet cloths (do wear gloves to rescue them from the diaper bucket) but it beats being unable to perform personal hygiene. Not long ago I even tore an old dress into soft rags to have on hand, again, just in case.

My parents went through the Depression so a lot of my upbringing had to do with waste not, want not, and with improvise or do without. As one born right as WWII and rationing ended, I think adjusting to the present day Corona "normal" was easier for people my age than for some of the younger generation. We didn't have tv when I was a kid and when I was raising my own kids a computer took up an entire building so we entertained ourselves – read, played games, made our own music, made up plays. So for those of us who are older may be less stressed by staying in than younger ones are.

SO this has been my lockdown experience so far. As a natural-born hermit I don't mind not goiing anywhere but my heart breaks for all who are ill or have lost loved ones or who are in harm's way. The whole world cries for compassion and unity and strength.

Please, all of you, be well and stay safe.

Fri, Mar 6 7:47pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Thanks for everyone's support!

Fri, Mar 6 7:45pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Antivirals can damage the kidneys but we thought the shingles would do more damage. A rock and a hard place!

Fri, Mar 6 12:50pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

To my brothers and sisters on this thread: I'm whiny today. GFR dropped from 32 to 28 and the day after the labs I came down with a severe case of shingles – most pain I've ever felt in my life including kidney stones and childbirth! Neph said I needed to take an antiviral even though it could drop GFR even more. Please send positive vibes that this is temporary! TIA.