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Helene Kay Cherokee name Kamama

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MO

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Posts (251)

Sun, Nov 24 8:55pm · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

@mignon, even with a medical background or maybe because of it, I always take a list of questions to ask the doctors. Fortunately, I also can email them at their clinics with questions as they occur to me between appointments. If you can think of things you want to know and can write them down to take with you to your appointment, it might be very helpful. And please come back and tell us what you find out. We care.

Sun, Nov 24 8:53pm · Stage 3/4 Kidney disease: I need support before my appointment in Kidney & Bladder

@mignon, welcome!

I waver between Stage 4 and 3b and cannot qualify for a transplant even though I have only one kidney left with about 33% function and must follow a very strict (but delicious!) renal diet.

I have other medical conditions and am disabled and in a wheelchair. I no longer can crochet or play the piano or do oil paintings but I still can write novels and cookbooks and be of service to others in small ways (including a 12-step recovery program) and I gotta tell ya, my life is a hoot!

Days are filled with laughter and friends, four-legged as well as the two-legged kind, and nights are filled with pleasant dreams.

There are many things I no longer can do but plenty I can do and still enjoy.

None of us really knows how long we have on earth so we can cherish each day that comes to us even if it brings troubles as well as joys.

If I live long enough, I'll eventually need dialysis and I'm already planning what to do while I'm in the recliner getting my blood cleaned, besides take a nap, that is. I'm sure I'll find something to enjoy during what can be a time-consuming and uncomfortable process two or three times a week.

Meanwhile, I have beautiful friends here. This is a wonderful group, we listen to one another and support each other and exchange information and we're so glad you joined us.

People can live a very long time in stage four and still do many things they enjoy. so there is hope!

Once again, welcome and journey with us!

Wed, Nov 13 10:40am · How long have you been sober? in Addiction & Recovery

@logansnana, well said. As a 74-year-old woman with a few 24 hours, I can attest to the fact that continuing daily contact with others in recovery, even if not face-to-face or at meetings, is vital not just to continuing sobriety but to serenity as well. I'm disabled with major medical problems and simply cannot attend meetings any more even though there is handicap/wheelchair transportation available here and my home group has lovingly built a wheelchair ramp for handicap access to the hall. Fortunately I live in an apartment complex where there are others in recovery and my door always is open to them as I have found that the key to sober happiness lies in service to others. Also fortunately, I have daily phone and internet contact with close friends in recovery. Even after all these years I still occasionally will phone someone to say my squirrel cage is full and they always help re-ground me. Just the act of reaching out, be it by phone or in a forum like this, can give steadiness to the recovery process. I sorely miss meetings and the physical presence of recovering people at the hall but life – and sobriety – still are sweet.

Mon, Nov 11 8:18am · Kamama94 Thank You for Your Recipe Book !!! in Kidney & Bladder

@fiesty76, as someone with fibromyalgia whose brain turns to jello during a flare, I totally understand spacey!

Mon, Nov 11 6:33am · Kamama94 Thank You for Your Recipe Book !!! in Kidney & Bladder

@fiesty76, thank you for your kind words. That means a lot. I believe information and knowledge should be free (along with a lot of other things like medications and medical care but we won't go there, LOL.)

I love those apples, too. Also like the maple bark/crisps even though they're labor intensive. Hope you can try the skillet bread, it's not as labor intensive and it's very mild but has almost no sodium and makes great toast.

I accidentally delete stuff all the time so am re-posting the recipe collections here just in case.

Sat, Nov 9 10:04am · Re: My Scan Results for followup of Renal Cell Carcinoma in Kidney & Bladder

First of all, you are NOT alone.

I agree with what JK says.

I also lost a kidney. Only thing is, nobody knew for years and years until my remaining kidney started to fail and scans revealed a totally atrophied left kidney with around 22% function in the right one.

I was furious! How could I not have known? How could this not have shown up on lab tests? Why did I have to develop diabetes which likely did most of the damage, along with kidney stones and bouts of kidney infections? How dare the universe ruin one of my kidneys? And how dare other people get in my way, speak to me at all, go about their business when I'm scared poop-less?

I was cross, cranky, irritable, asked a zillion questions.

But no nurse or doctor ever told me I was "more anxious." That nurse should have her license jerked.

Of course I was anxious. Of course you are anxious. Of course I was grumpy. Of course you feel grumpy.

Just know that the anger and fear probably will subside the more you know because knowledge is power.

I, too, resent the "invasions" of my privacy with tests and scans but I also now welcome them because at least I will know what's going on and can take appropriate measures.

The difference between us is that I didn't see a therapist formally as I am a member of a 12-step program which gives me tools – and expert people – to deal with my issues of resentment and fear and one of them happens to actually be a therapist.

I would venture to say that most of us here feel or at least have felt like you do and we are here for you. You can vent, rant, complain and we all will understand and support you. Together this group has some answers. . .

You are not alone!

Thu, Nov 7 6:05pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

@fiesty76 , Lots of good edibles on a renal diet! Somewhere in this thread is a free cownloadable copy of an early recipe collection. Currently working on a second one as new discoveries are made and new things come to light and will be posting those recipes sometime in 2020.

Thu, Nov 7 6:02pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Welcome, @winchester! Lots of good edibles on a renal diet! Somewhere in this thread is a free cownloadable copy of an early recipe collection. Currently working on a second one as new discoveries are made and new things come to light and will be posting those recipes sometime in 2020.