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Posts (9)

Thu, Mar 7 10:36pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

What I learned is that an ENT is the one will conduct a styloidetomy. So sorry to hear about the headaches, I’m sure that can be tormenting.

Wed, Feb 6 9:27pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

I went to several ent’s but the Dr. Who finally helped me was Dr. Lentch is in Charleston, SC.
He was up front and he turns about 80% away. It’s so rare for both the patients and the doctors. But he was very concerned for his patients and tries to help. At least he doesn’t just dismiss you. Hope it helps

Tue, Jan 22 9:49pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

Yes Thank you. It is nice to be without pain. I praying for the same for you also. I really hope a doctor has or a researcher has compassion on those that suffer and more is found out about this disease.

Tue, Jan 22 6:49pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

Be encouraged!! I’m hoping it will work out for you. I had a bilateral styliodectomy January 7. I’m post operative 2 weeks and doing just fine. I had tons of swelling in my neck and face that slowly subsided. I took 2 weeks off work but the doctor said 3 weeks recovery period is the best. I still can not to no lifting or have any vigorous activity. Because my tonsils were removed I followed that post op with some add ones from the doctor. My surgery was done through the tonsill cavity not the neck. I key for me was that all my medications needed to be liquid because of the swelling. It was really bad that even water if I didn’t drink slowly it went up my nose. The great part is my symptoms is eagle Syndrome are all but gone. I feel like a new person.
The doctor said you can have mock issues up to 3 weeks as your nerves and inflation and having to readjust.
Hope this helps

Tue, Jan 22 5:24pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

Yes, Hoping for the best. I have read it’s wise for the ENT’s to make sure the pain isn’t from anything else before scheduling a styoidectomy.

Tue, Jan 22 5:21pm · Eagle's Syndrome in Ear, Nose & Throat (ENT)

I have been thinking about you
And wondering if you were able to your surgery rescheduled.

Nov 2, 2018 · Eagle's Syndrome in Ear, Nose & Throat (ENT)

No, I have not had any orthodontic work.

Nov 2, 2018 · Eagle's Syndrome in Ear, Nose & Throat (ENT)

I understand that feeling. It has occurred to me also doctors not believing me or thinking I’m strange. It can be very disheartening.