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22 hours ago · C. difficile -are your guts ever normal again ? in Digestive Health

@patts When you do a pulse a taper, it's a way of weaning you off the drug and hope more "good" bacteria will grow. You may now be taking 2 or 3 Vanco a day and when you taper, you may go to 1 or 2 and day for one week and then it will be cut to one a day…. and in my case, I even went to 1 every other day. However, two weeks after doing that, the Cdiff returned. As a last resort, I took Dificid which is highly expensive. I had made the decision that if the Dificid did not work, I would do the FMT.

1 day ago · C. difficile -are your guts ever normal again ? in Digestive Health

@sarasally2 I can sure relate except that I wasn't in the hospital during my 4 bouts of Cdiff in 2018. I've never gone through anything like it. I took Flagyl, Vancomycin twice and even did the pulse and taper for 6 weeks and finally Dificid worked for me. It's terribly expensive and I'm sure that's why the insurance doesn't cover it until I'd tried Vanco. My next alternative was going to be the FMT. All this from taking Clindamycin for a sinus infection. Every time I hear that someone I know is taking antibiotics, I cringe.

2 days ago · C. difficile -are your guts ever normal again ? in Digestive Health

@sarasally2 What antibiotic are you taking now? Hopefully you will be okay since it's been 5 years since your last Cdiff episode. Please let us know how you're doing.

3 days ago · C. difficile -are your guts ever normal again ? in Digestive Health

@annapocono I got Cdiff two weeks after taking Clindamycin. I was prescribed it for 14 days for my 4th sinus infection. NEVER again. I had also taken a Zpack after my 2nd sinus infection. Thank the good Lord I got through last winter without getting a sinus infection. Praying this winter goes as well as last. My last and 4th bout of Cdiff was last October. I've made it almost a year. I had a heck of a time getting rid of it. So thankful that Dificid worked as Flagyl and two RX's for Vancomycin both couldn't touch that dreadful spore.

5 days ago · C. difficile -are your guts ever normal again ? in Digestive Health

@patts I also did a second round of Vanco and even did the pulse and taper for almost six weeks. But Cdiff returned a couple weeks after finishing the taper. Dificid was the med that worked for me after my 4th bout of Cdiff. That was last October so I'm almost one year without a relapse. And believe me, I knock on wood whenever I write or say that. I still deal with terrible gas pains late at night and early morning. I wish you well and certainly understand what you're going through. Until you've gone through this dreaded Cdiff, I don't think people truly understand how debilitating it can be…. both mentally and physically.

Fri, Aug 23 12:45pm · C. difficile -are your guts ever normal again ? in Digestive Health

@patts I know EXACTLY how you feel. Last year, I was going through the same thing you are. I got Cdiff from taking Clindamycin for a sinus infection. Unfortunately I went for almost two weeks thinking I had Ecoli and didn't go to the doctor. The Ecoli scare from eating romaine lettuce was going around at the same time as my first bout. My first bout was in May and my last one was in October. I went through doses of Flagyl, Vancomycin (twice) and even did the pulse and taper of Vanco for 6 weeks and finally took Dificid last October. The Dificid was terribly expensive and I understand why they don't prescribe it first. I had decided a fecal transplant would be my next option. If the Vancomycin doesn't work for you, I would suggest that you try Dificid. I know exactly how you feel as I spent most of the summer in our home or backyard. I cleaned everything in our home from light switches to wiping down handles of everything I touched. I sleep with a pillow between my knees and after my 3rd bout, I tossed out that pillow thinking maybe it was contaminated. I truly became paranoid because of that dreaded Cdiff. Something I had never even heard of prior to May. My gastroenterologist suggested I take Florastor has it has S. Boulardii. Hand washing is key. I was around family members during all four bouts of Cdiff and my husband, daughters and grandchildren did NOT get it. It would be interesting to know if anyone on this site has ever infected other family members. I know it runs rampant in nursing homes because of contact but I've not heard of any cases in individual homes. I was happy I found this site where I could discuss my "woes" with others who truly understand.

Fri, Aug 2 12:42pm · C. difficile -are your guts ever normal again ? in Digestive Health

@nettecook We really do need to read the ingredient labels. I gained back the 10 pounds I had lost from my last Cdiff episode during the Thanksgiving and Christmas holidays. Sorry to hear you also have to deal with IBS issues.

Tue, Jul 30 10:46pm · C. difficile -are your guts ever normal again ? in Digestive Health

@pat70 My gastroenterologist had me take Florastor. You need to be taking a probiotic with S. Boulardii in it. I too got Cdiff last year after taking Clindamycin for a sinus infection. I had such a hard time getting rid of it. The Vancomycin did not work for me. My insurance approved me taking Dificid (fidaxamycin)) after I had taken two rounds of Vanco. I even did the pulse and taper for 6 weeks. My heart goes out to you. I was encouraged by others on this site and their sharing. I had not even heard of Cdiff before getting it.