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Posts (8)

Tue, Jan 8 10:28am · Lyme disease and neuropathy in Neuropathy

My understanding of Lyme disease is that most standard blood tests for it are only 25% reliable., so it's quite possible that you got an "all clewar" from a blood test.
I have heard that IGen-X is very good, but that the authority is a lab in Germany that is the best in the world: http://www.arminlabs.com/…/tick-borne-diseases/lyme-borreliosis.
My HBOT therapy (which is the only reliable way that I know of to get rid of chronic Lyme disease is about half way through now and my PN symptoms have lessened dramatically (in my case, I am trying to rule out Diabetic PN because it came on so suddenly after being diagnosed Type-II diabetic, and progressed from my feet to my waist in less than a year. The HBOT therapy has driven down to my calves, so far.
I think the intense antibiotics are only effective if you catch the Lyme disease early on (within about 48 hours of the bite).. Hope this helps.

Wed, Jan 2 12:05pm · Lyme disease and neuropathy in Neuropathy

I started HBOT (Hyperbaric Oxygen Therapy) for suspected Lyme disease on Dec 12th and it is helping reduce the pins/needles and paid that I have in both feet and legs. It's the only treatment that I have been able to find that can eliminate the spirochaetes (B. burgdorferi anaerobic bacteria). Take a look on http://www.oxygenunderpressure.com for reports about using HBOT for Lyme treatment, and also notice how similar the symptoms are to peripheral neuropathy.
The recommended hours for complete elimination of the bacteria is 98 hours, in 1.5 hour sessions each day. The cost here in Canada is $150 per session (so, just over $10,000 CDN in total), but I hear that it can be a lot more expensive in the U.S. and is not covered by the health care plans.

Dec 19, 2018 · Hyperbaric treatment for diabetic neuropathy and ulcers on feet in Diabetes/Endocrine System

Hi @squaredancer thanks for your valuable comments.
I am in Canada and here the doctors don't prescribe HBOT for Lyme disease. There are only about 13 conditions that are prescribable for HBOT and therefore covered by our health care or private insurers (for instance, treatment of diabetic ulcers); however, the good news is that the private company who provides the therapy only charges $100/hour. Each therapy session lasts 1.5 hours, and the total cost is $9800: that's actually only 68 sessions.
The write-ups that I have studied say that the risk is very low because the pressure is only 45 psi (3 atmospheres), and is therefore much less than most scuba divers experience during a dive.
So far, the pins and needles pain that was up to my navel, has receded and is now concentrated in my calf muscles and feet, so I think the treatment is working. Will keep you informed.
Blessings to you too.

Dec 14, 2018 · Hyperbaric treatment for diabetic neuropathy and ulcers on feet in Diabetes/Endocrine System

Hi @squaredancer and @ethanmcconkey, Thanks for your posts. I have a kind of unique situation where I am trying to rule out another disease that can cause very similar nerve damage as diabetic neuropathy: Lyme disease. I believe that I got a tick bite in 2015, and though the doctors prescribed two course of anti-biotics, it has come back in the form of pin/needles/numbness and pain starting in the feet and working upwards through the legs/groin and higher. It has got so bad that I have difficulty walking. So, I have signed up for a 98 day Hyperbaric treatment which, if it is Lyme disease, will cure it, and if it is diabetic neuropath, it will help a bit, maybe slow it down, but will not cure it.
I have started the treatments two days ago, and will let you know how it goes.

Dec 12, 2018 · Hyperbaric treatment for diabetic neuropathy and ulcers on feet in Diabetes/Endocrine System

I have heard that Hyperbaric treatment is great for healing foot ulcers caused by diabetes, and may be useful to help pain and numbness in the legs and feet caused by neuropathy. Does anyone have any experience with this treatment?

Dec 2, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you John. This is very useful information.
I followed all links and the articles are very positive about the potential benefits of Wharton's Jelly injections for diabetics and PN.
Looks like a human clinical study was done in China with very positive outcome.
If you hear of any human trials here, I would volunteer.

Dec 2, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Does anyone have any knowledge or experience with Wharton's jelly injections for PN? There are clinics offering it and claiming that there are no risks. Wharton's jelly is taken from the umbilical cord of newborns (normally it is disposed of with the afterbirth unless the parents want it stored for future use). The clinics claim that it can help with PN plus arthritis and other inflammation and auto-immune damage.

Oct 28, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi, i am new to the group. I have had type 2 diabetes for two years and am taking Metformin. I was having no luck getting my blood sugar down to below 11 until my wife gotboth of us on a Keto diet. Now, most of my readings are average of 7. Today’s was 4.6 before supper after a day of hard work.
I have dealt with the numbness and tingling in both feet, then both legs. It is now above the waist.
I can deal with that, but I also have extreme muscle weakness in both legs which gets worse if I am working on my feet for hours. I haven’t read of muscle weakness in any of the posts I have reviewed. Is anyone else dealing with that effect of neuropathy, and if so, what can be done about it?