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Sat, Apr 20 10:10am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi Merry,
Nice of you to think of me. Admittedly, have only scanned the Boards as little information was being addressed regarding LCNELC. Unfortunately, there are few, good Oncologists hete but I did go to see Dr. Wakelee at Stanford and made an appt to see her again this Monday. She is, technically, not my treating physician, but has been great answering some of my questions. I just finished my 4th round of Chemo (Carbo/Etroposide), followed by 5 days of Granix shots. Treatments seem to be a bit rougher each time. After the first 2 rounds, a PET scan was done which shiwed some shrinkage and no new spots. I have a repeat PET on 4/27. I have been told this Chemo will only help for so long and I started them in January. The Onc here is not good about discussing things so I want to go back to Stanford. Myself, friends and family cannot find many options for treatment. I was told, because she feels I have an underlying immune problem, immunotherapy might be risky for me. Add my age, and I might not qualify for any trials. Truthfully, trying those drugs scares the hell out of me as my body does not to,erate drugs well. Between Chemo treatments, dealing with low WBC and RBC, feeling sick, I think I have maybe one week a month I can try to function. We seldom go anywhere. Just a bit down lately. My cough is wirse and fatigue is catching up with me. Just hoping this Chemo is still holding things at bay. After 3 different diagnosis, I hope they got it right. Thanks again and hope you are doing well!!

Tue, Feb 26 10:45am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi Merry. I did go to the ER for 7 hours! They did a chest X-Ray and chest CT and EKG but could not come up with a good reason for the pain. They tried their best to keep me isolated. Finished my second round of Chemo on Friday and still not feeling well, bloating, nausea, coughing. They started me on the Granix shots. I have gotten two and need 3 more. Not sure if that is adding to the unwell feeling. Doctor has me set up for another PET scan on 3-8. If there is no improvement I am not sure what he will advise. He gave me the impression there is no protocol fir this. I would probably see if I could get in to see Wakelee at Stanford again. I see that MD Anderson has partnered with Scripps down by San Diego. My daughter lives down there but do I want to travel, start all over and inconvenience them? Will wait to see what the PET shows. Thanks for checking on me.

Mon, Feb 18 10:25am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

I can be anxious too in some situations. Try just taking 1/2 a pill. If that doesn't help cut the edge off in an hour, take the other half. I found that will often work for me. Even though I have taken it fir so long, a whole pill makes me feel kind of sleepy.

Wed, Feb 13 9:37am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Merry, that would cost a fortune here and I am not physically up to it. I think I need to call so done this morning or go to ER. My whole chest is hurting. No temp. Need to get dressed. And, more hair falling out.

Wed, Feb 13 9:35am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

That was close! Nope, my hair is definitely coming out. Yes, put make up on everything Rey day.

Tue, Feb 12 8:34pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I don't know why I have issues posting on this site.

I have a couple of questions. I have a rare firm of lung cancer, LCNELC, but lung cancer is lung cancer, I guess.

I have been having some discomfort and occasional pain in my liver area but know I have spots there. However, I will get pains in other areas of my body. Had pretty bad pain on my right shoulder blade for a few days but that is pretty much a twinge now. Have had pain on and off in various places on my ribs but that comes and goes. Have had pain, like this morning, in my upper chest. Had pain above my left breast. Had pain on the side of the breast toward my arm pit that cones and goes. Asked the doctor, who has been doing this for over 29+ years, what was causing these pains and he said he didn't know! No discussion, that was it. Anyone with LC have pains like this? If so, anyone have a doctor that knows the cause?

Tue, Feb 12 8:20pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I have read that but hard to believe he coukd exoect much improvement by Tuesday but I don't know how quickly they regenerate. Yes, read about being careful and how, tell my husband! I think family and friends are getting tired of me asking them to use hand sanitizer.

Yes, I have blood work done before my chemo. Thus woukd have only been my second round. Niw, he has me scheduled for Chemo then 5 days of Granix injections, then a PET scan. He had talked to me about getting a port, something I was not excited about. Now, has me scheduled for a port after the PET. Nurse calls me to set up the port procedure then reads his notes and it says, if needed. WTH! Does that mean if no improvement, or it has spread, no more chemo? With this cancer, they have given me no alternatives.
There is not a whole lot of support thru Sutter, not even a Support group.

Tue, Feb 12 2:52pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Saw my dictir this morning. My Neutrophols are only .8! He us skipping Chemo this week, will recheck blood work on Tuesday, Chemo next week for 3 days the 5 days of Granix injections. Going to try and schedule me to get a port put in (shudder) then a PET scan. I was going to ask him how he thought I was doing but guess he can't answer that until after the scan. Asked him about the pains I am getting and he didn't know why. Had pain in my cgest and by my left arm pit this morning. Hard to believe he has done this fir so many years and has no answers. To,d him I found a couple of posts where people with this LCNELC are also getting Keytruda or Opvido but he says that is immunotherapy and he and Wakelee are wary of trying that on me because, this undiagnosed, they are sure I have some immune probkems going on since before this cancer diagnosis. Guess it is a wait and see. Wish he were more talkative.