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Tue, Feb 26 10:45am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Hi Merry. I did go to the ER for 7 hours! They did a chest X-Ray and chest CT and EKG but could not come up with a good reason for the pain. They tried their best to keep me isolated. Finished my second round of Chemo on Friday and still not feeling well, bloating, nausea, coughing. They started me on the Granix shots. I have gotten two and need 3 more. Not sure if that is adding to the unwell feeling. Doctor has me set up for another PET scan on 3-8. If there is no improvement I am not sure what he will advise. He gave me the impression there is no protocol fir this. I would probably see if I could get in to see Wakelee at Stanford again. I see that MD Anderson has partnered with Scripps down by San Diego. My daughter lives down there but do I want to travel, start all over and inconvenience them? Will wait to see what the PET shows. Thanks for checking on me.

Mon, Feb 18 10:25am · Just started Xanax...anyone have experiences to share? in Depression & Anxiety

I can be anxious too in some situations. Try just taking 1/2 a pill. If that doesn't help cut the edge off in an hour, take the other half. I found that will often work for me. Even though I have taken it fir so long, a whole pill makes me feel kind of sleepy.

Wed, Feb 13 9:37am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Merry, that would cost a fortune here and I am not physically up to it. I think I need to call so done this morning or go to ER. My whole chest is hurting. No temp. Need to get dressed. And, more hair falling out.

Wed, Feb 13 9:35am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

That was close! Nope, my hair is definitely coming out. Yes, put make up on everything Rey day.

Tue, Feb 12 8:34pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I don't know why I have issues posting on this site.

I have a couple of questions. I have a rare firm of lung cancer, LCNELC, but lung cancer is lung cancer, I guess.

I have been having some discomfort and occasional pain in my liver area but know I have spots there. However, I will get pains in other areas of my body. Had pretty bad pain on my right shoulder blade for a few days but that is pretty much a twinge now. Have had pain on and off in various places on my ribs but that comes and goes. Have had pain, like this morning, in my upper chest. Had pain above my left breast. Had pain on the side of the breast toward my arm pit that cones and goes. Asked the doctor, who has been doing this for over 29+ years, what was causing these pains and he said he didn't know! No discussion, that was it. Anyone with LC have pains like this? If so, anyone have a doctor that knows the cause?

Tue, Feb 12 8:20pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

I have read that but hard to believe he coukd exoect much improvement by Tuesday but I don't know how quickly they regenerate. Yes, read about being careful and how, tell my husband! I think family and friends are getting tired of me asking them to use hand sanitizer.

Yes, I have blood work done before my chemo. Thus woukd have only been my second round. Niw, he has me scheduled for Chemo then 5 days of Granix injections, then a PET scan. He had talked to me about getting a port, something I was not excited about. Now, has me scheduled for a port after the PET. Nurse calls me to set up the port procedure then reads his notes and it says, if needed. WTH! Does that mean if no improvement, or it has spread, no more chemo? With this cancer, they have given me no alternatives.
There is not a whole lot of support thru Sutter, not even a Support group.

Tue, Feb 12 2:52pm · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Saw my dictir this morning. My Neutrophols are only .8! He us skipping Chemo this week, will recheck blood work on Tuesday, Chemo next week for 3 days the 5 days of Granix injections. Going to try and schedule me to get a port put in (shudder) then a PET scan. I was going to ask him how he thought I was doing but guess he can't answer that until after the scan. Asked him about the pains I am getting and he didn't know why. Had pain in my cgest and by my left arm pit this morning. Hard to believe he has done this fir so many years and has no answers. To,d him I found a couple of posts where people with this LCNELC are also getting Keytruda or Opvido but he says that is immunotherapy and he and Wakelee are wary of trying that on me because, this undiagnosed, they are sure I have some immune probkems going on since before this cancer diagnosis. Guess it is a wait and see. Wish he were more talkative.

Tue, Feb 12 10:41am · Living with lung cancer - Introduce yourself & come say hi in Lung Cancer

Thank you, Merry. You are a world of knowledge and support. I actually joined a Chemo Support group on FB and everyone shares knowledge and experience. I did get a wig a couple of weeks ago and ordered a couple of the Chemo caps, which look horrible on me! Guess I can wear them around the house. I need more poof. Have read it is better to buzz your head rather then shave it. Yes, this is very hard as I am one that curls and styles my hair every day. Now, I haven't washed it for a week. I guess, since I have not been given many options for treatment, this almost seems futile but I do not want to die any time soon. I would talk to Wakekee before I make any decisions. Was thinking of maybe going to Scripps but, again, would be difficult and I hate to be far from home. Will see what he says this morning.