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Posts (27)

Tue, Apr 23 1:50pm · Turmeric in Autoimmune Diseases

Hi @noosat1…how did you ever get off sugar? I’m finding it one of the most difficult things to do. Have had PMR since last Oct. have you had any falls? I’ve just had my third one and the bruises are piling up!! Also, has anyone ever heard of Beau’s lines? I’m getting lines on my nails which go across the nail rather than up and down….

Sat, Apr 6 2:04pm · New Diagnosis of Polymyalgia Rheumatica (Husband) in Autoimmune Diseases

@noosat1…I too am fairly new to PMR…diagnosed last Oct. been on Prednisone, starting at 20 mgms, then on 30, now down to 10. Could you tell me some of the ‘unpleasant’ things that were/are happening to your body. I have fallen twice and now my balance is ‘the pits’. Can handle the hair loss, the weight gain, personality change, etc., but seem to be in a brain ‘fog’ most of the time! I have glaucoma as well and my vision has deteriorated. All in all, I guess I just want to know if I’m on the right track. John has been very helpful, but I have not been back to him lately. Sorry, John. Will try to do better!!

Sat, Mar 16 11:47am · Prednisone in Digestive Health

@noosat1 are you tapering through your rheumatologist’s advice, or on your own? How long have you had PMR and what kind of reaction do you get when you taper? Thanks for answering…

Sat, Mar 9 9:35am · Polymyalgia rheumatica in Autoimmune Diseases

Hello, @ambershe, just read your comments re throbbing knee pain during the night…have you ever been awakened by badly itching and painful legs? Just wondered. I don’t think anyone knows why we get PMR. Guess we have to be thankful for prednisone. Also, it’s hard to find out if what we are experiencing is being caused by prednisone or PMR. Hope you have good support…it’s so important. Hang in there.

Mon, Feb 25 10:24am · Polymyalgia rheumatica in Autoimmune Diseases

@johnbishop

Hi John, I am now on 15 mgms of Prednisone, down from 30 which is good. Now have probs w/hips, but had cortisone shots to help. Can you tell me if you had blood pressure probs while on Prednisone ? Mine seems to be higher in the eve. I really enjoy reading your comments and hope your PMR stays in remission!!

Wed, Feb 13 11:15am · PMR and the new Shingles vaccine in Autoimmune Diseases

Hi @bt56..did your doctor say if the PMR caused the shingles? Just wondering because I’ve had shingles and have PMR now.

Wed, Feb 13 10:56am · Humor as a Coping Tool in Just Want to Talk

Hi @sofaramnotdead – does anyone like the Frasier reruns? I think they are truly amazing and I’ve heard they may start a new series. One has to appreciate a sarcastic sense of humour though, so it may not be everyone’s cup of tea! ‘Tis so important to laugh as that will get us through the tragedies that we may face in life and lift us to a better place!