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Posts (36)

Fri, Sep 6 9:26pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks for info, John. Rheumy back in office now and I had to go back up to 20 mgm. Bit of a shock, but the pain was so bad. Also found out that #s were quite high. Can’t believe where one has pain from PMR…fingers, hands, hips, upper arms, neck, shoulders. Guess I should have called rheumy earlier…much earlier. Many thanks for everyone’s help!! It’s good to have this blog.

Wed, Sep 4 4:34pm · Polymyalgia rheumatica in Autoimmune Diseases

@johnbishop..thanks for info, John. When you ‘bumped’ up your Prednisone, have you any idea how long you waited before ‘bumping’. I see the rheumy tmo, and I know she has talked about the handling of the pain, but truly, I don’t know how long to gauge the length of time when I must add more meds. I do like the fact that your rheumy wrote a script for 1 mg pred so you could add same if/when needed! I’m on quite a few meds and am very leery about taking more of one thing! Thanks for any wise words you can think of. When your pain was really bad, were you able to walk and did it help?

Wed, Sep 4 4:23pm · Polymyalgia rheumatica in Autoimmune Diseases

@becsbuddy…thanks for the info. How long were you on 14 mgms before you dropped to 13 and did the pain come back right away? My rheumy is back from hols and I have an appt for tmo, thank goodness! Any info you want to pass on, I would appreciate getting. Again, my thanks for replying. It is a comfort to know that there are humans out there who have this dreadful disease! One doesn’t want to complain, and it’s a real blessing to have friends who have a sense of humour!!! For that, I am so lucky. Good luck with your next dr. I notice you said ‘neurologist’ and not ‘rheumatologist’. Didn’t realize that they could handle PMR as well.

Mon, Sep 2 4:51pm · Polymyalgia rheumatica in Autoimmune Diseases

Hi kdmorris, is the Celebrex that you are taking in place of Prednisone? I’m trying to taper off Prednisone, but the PMR seems to have returned! Any helpful info? Thanks.

Mon, Sep 2 4:46pm · Polymyalgia rheumatica in Autoimmune Diseases

Hi John, my pain was really bad today in wrists, fingers, shoulders & hips so I took an extra half a tablet today, the day I was supposed to be off the Prednisone. Doctor still not back from holidays. Did you ever do this? Thanks again!

Sun, Sep 1 10:07am · Polymyalgia rheumatica in Autoimmune Diseases

Did your rheumy prescribe the 20 or did you just take it. Again, thanks for such a fast reply.

Sat, Aug 31 8:07pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks for such a fast reply, John. When you had a recurrence of PMR, did it start up again in the same manner?

Sat, Aug 31 5:34pm · Polymyalgia rheumatica in Autoimmune Diseases

Hi @beryl, I, too, am having a return of PMR and the smiles and happiness are getting kinda thin!! My GP says that it’s only been since last Oct/18, but to me, it’s been sooooo long! I’d never heard of this awful disease…until I got it!!