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Posts (41)

5 days ago · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Hello, Pauletta@rachelp, I really have to agree with you that fatigue is huge when you have PMR. I was diagnosed in Oct’18 and still can’t get rid of it! Was on 25 mgms Prednisone and finally, got down to 1.5…then it raised its ugly head again and I’m now back on 10 mgms. It’s in my hands and wrists as well as shoulders. Yes, still hoping for remission…or more energy! John has been very helpful, giving advice on what to read, etc. It appears that not too many people know about PMR and that makes this MC blog so very helpful. Good luck with your remission.

Wed, May 13 10:06am · Polymyalgia Rheumatica (PMR), prednisone and Coronavirus COVID-19 in Polymyalgia Rheumatica (PMR)

Hi. I’ve been on 20mg Prednisone for almost a week…have had severe pain in hands/wrists and had to go up from 2mgs. Rheumy advised me to stay in, no going out because of COVID-19. Have had PMR since Oct ‘18 and been up and down w/Pred. Hope this is of some help.

Wed, May 13 8:59am · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Thanks so much, John. Since writing the above, I now have PMR in my hands and wrists. Rheumy put me back up to 20 mg from 2 mg, but just for a week!! Pain is much better. Apparently, with Pred this high, one cannot venture outside during COVID-19.

Fri, May 8 4:03pm · Diagnosed with PMR 2 1/2 years ago. How do I manage the extreme pain? in Polymyalgia Rheumatica (PMR)

Hello, John…I wrote to you today, but don’t know if I did it correctly…am trying again after reading the above. This last month, and I was going down from 5mg to 0…presently at 2mg, I have been having severe pain in my hands, incl fingers, wrists, neck and L shoulder. Rheumy put me up to 20mg, starting today, but for only one week to see what happens!! Is it possible for the pain to lessen by the afternoon? Would really appreciate your advice once again. Trust the PMR is staying away from you, especially with this dreadful C-19. Many thanks, Eileen

Tue, Mar 17 10:27pm · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Hello again, John…I’ve had PMR now for 1.5 yrs and am still on Prednisone…down to 4 mgms …went down too quickly and PMR returned. Could you please tell me if PMR is a compromised autoimmune disease. Now that the new COVID-19 VIRUS has arrived, do you know if people who have this are being told to stay at home? Especially if they are over 70, which I am! Once again, I thank you for any advice you can give me.

Sep 6, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

Thanks for info, John. Rheumy back in office now and I had to go back up to 20 mgm. Bit of a shock, but the pain was so bad. Also found out that #s were quite high. Can’t believe where one has pain from PMR…fingers, hands, hips, upper arms, neck, shoulders. Guess I should have called rheumy earlier…much earlier. Many thanks for everyone’s help!! It’s good to have this blog.

Sep 4, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

@johnbishop..thanks for info, John. When you ‘bumped’ up your Prednisone, have you any idea how long you waited before ‘bumping’. I see the rheumy tmo, and I know she has talked about the handling of the pain, but truly, I don’t know how long to gauge the length of time when I must add more meds. I do like the fact that your rheumy wrote a script for 1 mg pred so you could add same if/when needed! I’m on quite a few meds and am very leery about taking more of one thing! Thanks for any wise words you can think of. When your pain was really bad, were you able to walk and did it help?

Sep 4, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

@becsbuddy…thanks for the info. How long were you on 14 mgms before you dropped to 13 and did the pain come back right away? My rheumy is back from hols and I have an appt for tmo, thank goodness! Any info you want to pass on, I would appreciate getting. Again, my thanks for replying. It is a comfort to know that there are humans out there who have this dreadful disease! One doesn’t want to complain, and it’s a real blessing to have friends who have a sense of humour!!! For that, I am so lucky. Good luck with your next dr. I notice you said ‘neurologist’ and not ‘rheumatologist’. Didn’t realize that they could handle PMR as well.