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Thu, Oct 24 11:52am · Multiple Myeloma in Blood Cancers & Disorders

I have MM.

Sat, Sep 14 3:01pm · Scalp and hair problems possibly from discoid lupus in Autoimmune Diseases

You can try Free & Clear conditioner. However, if you're treating a contact allergy you have to eliminate all products that have it not just hair products. I have fragrance contact allergies and I react on my scalp and neck. But contact can be almost anywhere on your body and you will still react on your scalp if that's where you react. If you want to avoid fragrance (it's in almost everything and in all but 1 or 2 medicated shampoos) you'll need to avoid it in hair care, body care, makeup, household cleaners, laundry, etc. Anyone can use the SkinSafe website and app and you can choose to eliminate products with fragrance or all of the top 10 contact allergens.
I use Free & Clear conditioner only because my hair was very dry. There's a good chance that you do not need to shampoo at all or don't need to use very often. I haven't used anything but conditioner on my hair for about 2 years. Because of that, I no longer needed a leave in conditioner or products for frizz.

Mon, Sep 9 7:49am · Scalp and hair problems possibly from discoid lupus in Autoimmune Diseases

Have you ever had patch testing done for contact allergies? I have Lupus. I also have environmental allergies. I had skin on my scalp/back of my neck get bad enough that I had a biopsy for psoriasis. I didn't have psoriasis, I ended up having contact allergies to fragrance. Steroids won't provide much relief for contact allergies and can be another contact allergy themselves. It can be very hard to avoid products with fragrance (and other top contact allergies.) Avoidance of triggers is usually the only way for skin to clear up. You have to avoid all products with – hair, skin, household – as well.

Sun, Sep 8 11:18am · Autoimmune and allergy in Autoimmune Diseases

I was diagnosed with lots of environmental allergies at 18 and did allergy shots for a short time. At 22 I was diagnosed with SLE (Lupus.) At about 40 I was diagnosed with (fragrance) contact allergies, but suspect those reactions started at about 30. And at 42 I was diagnosed with Multiple Myeloma. I had a stem cell transplant in June so now I'm wondering how that may affect my allergies. I'd say there's a good chance that they're all connected but the connection would probably be a disfunctional immune system. In regards to itchy scalp and hair loss – I'd look into contact allergies and those are rarely helped by antihistamines, you have to stop using products that trigger it and avoiding fragrance in household products is very hard.

Tue, Apr 2 3:49pm · stress eating in Diabetes/Endocrine System

You’re going to have have a replacement for the candy. Perhaps eat a better breakfast with protein and fat to make sure you’re not hungry and then try snacking on slices of cucumbers or something similar and low carb – but breaking the habit on non-stop snacking would be best.

Wed, Mar 20 5:41pm · Please help in Autoimmune Diseases

Can you get a second opinion from a different Rheumatologist? Or perhaps Gastroenterologist for the GI infections?

Sat, Mar 9 12:33pm · Botox for chronic migraines: is it safe(ish) for MCTD person? in Autoimmune Diseases

I have lupus and I when I was having almost daily migraines, I did Botox for it. The number of (tiny) injections at one time made me feel sick and I felt pretty bad the rest of that day, but it did work.

Wed, Jan 9 4:52pm · Hypogammaglobulinemia in Autoimmune Diseases

I’ve had lupus for 20 years. About a year ago my allergy doctor came across IG deficiencies in blood work – all of them. It was assumed that I had CVID. That info was sent back to my Rheumatologist who gave me the pneumonia booster vaccine to check for response. I did respond so they thought I didn’t need to do anything at that time. 6 months later new blood work comes back with MGUS, follow up on that was crazy high Lambda free light chains. Follow up on that with hematologist who reran the bloodwork because she thought the test might have been messed up. They came back similar. Followed that up with bone marrow biopsy and got a diagnosis of Multiple Myeloma. I was IG deficient because the Myeloma cells were crowding out the other cells. It can be a crazy ride through doctors so definitely find some you trust to work with.