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Fri, Jan 3 11:53am · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

Polkagal my heart goes out to you. Cherish the journey she was on with you and smile when you say think of her.

Dec 4, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

Wow! that is just the best! Forever grateful and this made my day… i think of you too so yes all of you keep up the good wishes for each ither💕💕👍

Dec 4, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

My CA125 holds steady at 10. It was never higher than 18 ever though even before the surgery and chemo..

Dec 4, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

I too was denied the sandwiched chemo – radiation – chemo cycle and in the end did 6 cycles of chemo. My chemo was 6 weeks after surgery. It was the lymph node involvement that worried them. No pelvic lymph nodes were positive just 2 paraortic nodes which they removed. I could have done radiation at the end but on further discussion oncologists said all it does is stop it form returning to the pelvic area not anywhere else and they didn’t think because of no positive action anywhere in my pelvic are that it would be helpful. Also once you have it there you can’t have it again so Ive kept. It for alter treatment which god willing Ill never need… We are all doing amazing well and the biggest struggle I find is. I’m constantly doing research to see whats out there and just arming myself to be my own advocate. Reading the posts here about drugs used is help. Each place has a different protocol it seems. I just wish they’d get together and compare what they are all finding!! Canada doesn't offer post surgery chemo drugs it seems. This forum certainly helps. Yes please check out the Grandondo. Vancouver to Whistler. Sept, 12

Dec 3, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

I suspect its the late effects of chemo as I have the same thing and have never been on the drug of which you speak. The leg jerks are quite painful and usually happen at night in bed..

Dec 3, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

And I just cycled the pyranees, did a triathlon in august and will do a granfondo ride next Sept.! Neither of the drugs you and miraclegirl were given were offered to me? I guess I need to know the pathology of my tumour. More research. It seems to never end but this is a good thing! Ecstatic to here you are training and the bike ride sounds intriguing. I am in Canada. What drugs made up your “non -curative” chemo? What an odd phrase to attach to out..Keep setting goals and reaching them that’s what I’m setting my mind to do. Ive been NED since May 2018 now. Chemo ended Oct. 31/18 but my oncologist says the NED goes from when the surgery removed it? They also said they were going for curative not palliative care. I will be asking about the drugs you tow ladies have mentioned. God bless all of us!

Dec 1, 2019 · Uterine Papillary Serous Carcinoma: What treatments did you have? in Gynecologic Cancers

What an inspiring story! So fortunate they found it and treated it. I have not heard of being on Aromisin as it's normally used for brest cancer but obviously it hasn't hurt you. My continued nerve damage is a direct result of the chemo I've been told so maybe it and not the drug is responsible?
You've given me such hope reading your posting this morning. Thank you so much and I suspect you'll be here a lot longer still 💕