I have been carrying this title of SPINAL SDHESIVE ARACHNOIDITIS SINCE 1976. however IT WASNT UNTIL I HAD SUFFERED GREATLY WITH PAIN THE DOCTORS COULD NOT FIND ANY REASON FOR! AND THEN FELL OUTSIDE MY SCHOOL AND ENDED UP IN A GREAT HOSPITAL YTHAT FINALLY TOOK SO MMANY TESYS I THOUGHT THEY WERE THINKING ME CRAZY. HOWEVER THE DOCTOR CAME IN. SAT AND DISCUSSED WHAT ALL TESTS HAD SHOWN. WHAT MADE HIM BELIEVE ME NOT KNOWING WHAT CAUSED THIS, WHEN I COULD NOT ENDUR THE PLACING A NEEDLE INTO MY SPINE TO DO A MYLEGRAM!
I found out that day that not all doctors are ethical. It was an intern who went through the spinal canal, causing instant paralysis that fateful day. The hospital however decided to not inform me that what had actually happened was I had an incomplete paralysis! I was paralyzed for months. Then when the feelings came back they told me it had all been IN MY HEAD!
nI have had electric sensations all over my body. I have been one of the first to join a group called COFWA. I have seen so many doctors I have given up of ever being able to be treated with respect and dignity. I finally found a pain doctor who went to college with my adopted mother. He had moved to California in his early career. I drive 200 miles a month just to get my RXs from him. IT IS WORTH IT!
I cant say enough about a caring and honest pain doctor. All others I have given up on. HIM however I will cherish and do al he asks.
I have researched and investigated every decent claim about this rare but painful condition. I think I can safely say that one day when God calls me home, I will not only leave my brain and spinal cord, but years of documenting papers so someday they WILL KNOW all about this THING!
I have begun to search out institutions and colleges to leave this precious gift to. I will keep all of you posted. Thanks for letting me vent. God be with all sufferers, everywhere.