@rabbit10 .. try gabapentin. Get some help. No meds is not good.
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My NCS and EMG was also negative but I've had two neuro surgeon and neurologist say I have Neuropathy. What good are the tests if the doctors disagree with results and cannot treat. It frustrating. I've been put on Gaba and if that doesn't work I'm supposed to take another medicine. My doctor put me on CBD which does nothing. Wish I had something good to report and help us all.
Hi I suffer like most of us on here with Peripheral neuropathy. I Am just starting on Gabapentin. and if that doesn't work Dr. say Lyrica?? Don't know what else to say. Hope we all find a miracle to help us with this pain.
Sounds like you have Lichen Planus of the skin. If your surgeon cannot help you ( and he certainly should try) try your primary doctor. If not Perhaps a skin doctor ( dermatologist) As for you mouth.. apparently you may have Oral Lichen , I have had both as well. The oral Lichen Planus I have is still bugging me and of course has flares that is very painful. I know how you feel. I have been seeing a Dental Pathologist at a nearby college. She has been helping me to relieve some of the pain and redness. I am taking a gel called Fluocinomide 0.5% gel and I use it 2 x s day. I also have Lozenges called Clotrimazole 10MG which I let melt in my mouth 4 xs a day. I use only Biotene Toothpaste ( gentle mint only it has a green bottom) I would advice you to see your immediate doctors or write to WEB MD on the net. There is a group called Oral Lichen Planus. I wish I could help you more. I can only say a prayer for your suffering. As we all do. OLP does not go away anytime soon. It will come and go perhaps with flares,. Do be careful what you eat and keep a diary of what bothers you most. I find spicy, overly hot, like soup. coffee too hot. A lot of fruits I love I cannot eat anymore. Good luck and blessing coming your way. Hang in there. It can get better.
Try getting some CBD. It should help with pain, inflammation, sleep and possible make it feel at least ok to eat. I finally did this and can't believe the difference. There is no "high" with this as there's no THC involved. But it really helps me. I ordered CBD + at Amazon. Dr Oz had a doctor on and they all think its ok. Of course I still have to use my Fluocinoide 0.05% Gel 2 x's a day for now. fIts not a cure but helps get thru a flare. Best of luck to you and all of us who suffer from this illness.
To all of us suffering from Oral and the other Lichens, my heart goes out to you. I have been seeing a dental/Pathologist at our nearby medical college. She has been helping me with different meds but as with most of us, not a lot does the trick we want. ( for it to just go away) However we are still trying things and I am now taking a trouche 4 xs a day that I disolve in my mouth. This is treat my yeast like thingy that just started. Dr. says it from too much prednisone I was taking. I also use Triaminalone 0.5% ointment 2 x's a day for my OLP. It does seem to be helping, in that it keeps it from getting worse and is livable for me. Good luck to us all. Please everyone, keep us posted with all and any help you are getting. Prayers to you all.