grammlyn (@grammlyn)

Sounds like you have Lichen Planus of the skin. If your surgeon cannot help you ( and he certainly should try) try your primary doctor. If not Perhaps a skin doctor ( dermatologist) As for you mouth.. apparently you may have Oral Lichen , I have had both as well. The oral Lichen Planus I have is still bugging me and of course has flares that is very painful. I know how you feel. I have been seeing a Dental Pathologist at a nearby college. She has been helping me to relieve some of the pain and redness. I am taking a gel called Fluocinomide 0.5% gel and I use it 2 x s day. I also have Lozenges called Clotrimazole 10MG which I let melt in my mouth 4 xs a day. I use only Biotene Toothpaste ( gentle mint only it has a green bottom) I would advice you to see your immediate doctors or write to WEB MD on the net. There is a group called Oral Lichen Planus. I wish I could help you more. I can only say a prayer for your suffering. As we all do. OLP does not go away anytime soon. It will come and go perhaps with flares,. Do be careful what you eat and keep a diary of what bothers you most. I find spicy, overly hot, like soup. coffee too hot. A lot of fruits I love I cannot eat anymore. Good luck and blessing coming your way. Hang in there. It can get better.

Try getting some CBD. It should help with pain, inflammation, sleep and possible make it feel at least ok to eat. I finally did this and can't believe the difference. There is no "high" with this as there's no THC involved. But it really helps me. I ordered CBD + at Amazon. Dr Oz had a doctor on and they all think its ok. Of course I still have to use my Fluocinoide 0.05% Gel 2 x's a day for now. fIts not a cure but helps get thru a flare. Best of luck to you and all of us who suffer from this illness.

To all of us suffering from Oral and the other Lichens, my heart goes out to you. I have been seeing a dental/Pathologist at our nearby medical college. She has been helping me with different meds but as with most of us, not a lot does the trick we want. ( for it to just go away) However we are still trying things and I am now taking a trouche 4 xs a day that I disolve in my mouth. This is treat my yeast like thingy that just started. Dr. says it from too much prednisone I was taking. I also use Triaminalone 0.5% ointment 2 x's a day for my OLP. It does seem to be helping, in that it keeps it from getting worse and is livable for me. Good luck to us all. Please everyone, keep us posted with all and any help you are getting. Prayers to you all.

Thank you so much for giving us the "diet". I certainly looks good to me and I have Lichen Planus. Any food suggestions will help us all with any of the immune diesases. Looks great to me. Certainly worth a try.

Rosemary: That was wonderful advice you gave epvb. Thank you so much as it helps me also. And I am sure others. My heart goes out to all other suffers of Autoimmune illness.

If I were you I'd get a second opinion.

I totally understand how you feel about all the doctors. I've seen 8 and two more to go this month. All different specialty. Its so discouraging. I have Oral Lichen Planus cannot help you but I can send my prayers and best of luck wishes for a recovery. Hang in there. You sound very strong.

I've had Lichen Planus vaginal or as my Dr. called it Lichen Sclerosis , and I've had it for many years. I used Clobetasol as Rxd by Gyno and it got me thru. As with all Lichen.. it so hard to get under control. The Clobetosol did relieve the pain and burning immediately. But as always it does come back. Maybe there's something new out there today. I would suggest you talk to your GYNO. Good Luck
and prayers sent.