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Posts (17)

Wed, Aug 14 12:23am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Why are people with no symptoms getting ct scans once a year? This exposes the body to radiation. What is the purpose?

Wed, Aug 14 12:21am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

The dentist (or a more skilled one) should be able to make you a special anti-grinding retainer to wear at night. They make them now if lightweight clear plastic. But it must be properly done, or you will grind more. It will discourage grinding and protect your teeth.

Tue, Aug 13 9:53am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you. I believe the body has 600 lymph nodes. So I can’t worry all the time about 6 or so I know are enlarged.

Tue, Aug 13 1:55am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

I should add that while the old enlarged nodes in armpits (not palpable) and neck are unchanged, two new enlarged nodal tumors were found on the sides of my abdomen, about 1.5 cm. They are not causing me any problems and do not change my status, according to the doctor, who has treated FL patients for over 30 years. Still low grade indolent, still watch and wait. I would be happier if it hadn’t spread to below the diaphragm, and this depressed me for a bit. But I’ve had to let it go. I have no symptoms, need no treatment, and must get on with life.

Mon, Aug 12 10:51am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you for asking. Still on watch and wait. Hot flashes that sometime worry me—don’t know how to distinguish them from possible lymphoma sweats. ?? Some ups and downs psychologicalky, but manageable. Good luck with the tooth!

Fri, Mar 15 1:57pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you. A hopeful story. 7 months since my diagnosis.

Mon, Mar 11 2:57am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

My doctor told me that CT scans also have radiation and that in the absence of B-symptoms, or complaints, they are also unnecessary.