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Posts (19)

Mon, Oct 28 10:00am · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

Thank you. Agreed.

I am still on watch and wait. A question I had for the group is why do you all seem to have annual CT scans? My doctor is fully opposed to this, saying it subjects the body to unnecessary radiation. The basic protocol I am living with is that in the absence of symptoms or difficult or stigmatizing tumors, that we do nothing except periodic check ups and blood work. I’d be interested in hearing the reasoning behind the annual cat scans.

Mon, Oct 28 3:52am · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

I am so tired of people posting about God in a way which is proselytizing. Look it up. This is a private matter for most people and unhelpful and even destructive to those who for reasons of their own cannot follow your very private regimen of healing. This is a medical site. The tone of superiority with your claim to special ownership of GOD is really not kind or helpful. You could say that spiritual support helps you and leave it at that. This is not a recruitment center.

Wed, Aug 14 12:23am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Why are people with no symptoms getting ct scans once a year? This exposes the body to radiation. What is the purpose?

Wed, Aug 14 12:21am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

The dentist (or a more skilled one) should be able to make you a special anti-grinding retainer to wear at night. They make them now if lightweight clear plastic. But it must be properly done, or you will grind more. It will discourage grinding and protect your teeth.

Tue, Aug 13 9:53am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you. I believe the body has 600 lymph nodes. So I can’t worry all the time about 6 or so I know are enlarged.

Tue, Aug 13 1:55am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

I should add that while the old enlarged nodes in armpits (not palpable) and neck are unchanged, two new enlarged nodal tumors were found on the sides of my abdomen, about 1.5 cm. They are not causing me any problems and do not change my status, according to the doctor, who has treated FL patients for over 30 years. Still low grade indolent, still watch and wait. I would be happier if it hadn’t spread to below the diaphragm, and this depressed me for a bit. But I’ve had to let it go. I have no symptoms, need no treatment, and must get on with life.

Mon, Aug 12 10:51am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you for asking. Still on watch and wait. Hot flashes that sometime worry me—don’t know how to distinguish them from possible lymphoma sweats. ?? Some ups and downs psychologicalky, but manageable. Good luck with the tooth!

Fri, Mar 15 1:57pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Thank you. A hopeful story. 7 months since my diagnosis.