@davidmth,thanks for sharing your symptoms. Please see my detailed note above.
I have found it difficult to describe my symptoms to my local EENT specialist. I got a strange feeling that she did not believe me or made me feel as if I was a hypochondriac.
I am a healthcare provider myself and found her reaction very disheartening.
In retrospect, I can understand the rare nature of this condition and the lack of frequent exposure to the symptoms involved.