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Mon, Mar 23 10:08am · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

I managed to walk around Lake Calhoun on Saturday with my brother, 3.2 miles. I think I jumped to week 12. Yesterday, smaller walk, but at least I got out!

Tue, Mar 3 11:38am · Let’s Go Walking! Join me for a virtual walking support group in Cancer: Managing Symptoms

First time I've seen this, I'm in if it's not too late.

Nov 30, 2019 · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

You are correct!! I started paging through it again, a lot of information. My next step is working on diet.

Nov 30, 2019 · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

I found it on Amazon, author Kate Gilbert. "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd Edition.

I suffered big time with the unidentified polymyalgia pain for 2 years. Chiropractic, physical therapy, personal trainers, TMJ specialists… it all made things worse. Only thing I didn't have was headaches. Finally, I saw my nurse about a cough and mentioned I had lost some weight. Blood work showed Sed rate 92, and then the fireworks began! Cat scans and MRI showed a lot of inflammation. Bilateral biopsy confirmed. I am so thankful this nurse paid attention, but now I ask a LOT of questions of any practitioner.

Prior to this blog I only found people with polymyalgia at Mayo. Nice to hear from those with GCA!!

Nov 30, 2019 · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

I too appreciate everyone's sharing of experiences. Diagnosed with GCA and Polymyalgia July 2018 and down to 5mg tomorrow, from 60mg. Yippee!! Only pain that has returned (at 7 mg) is the jaw, which is odd, because that had gone away immediately. Nothing compared to what the overall pain was. Hope to eventually get off totally, at some point, but I'm comfortable with what I'm doing. I just recently read a book on GCA written by an English woman, not a doctor. I think it was good I read it now and not earlier.

May 26, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I'm not sure if it was the prednisone, however, my night vision became a lot worse, and I ended up having cataract surgery, which I probably would have anyway at my age, 71. I was diagnosed with GCA which can affect eyesight and cause blindness if not caught. Relieved that I was diagnosed!!! 10 mg, down from 60 in July.

Feb 25, 2019 · How to address PMR pain while decreasing prednisone in Polymyalgia Rheumatica (PMR)

I had left leg. Cramps in the morning for several months before I was diagnosed with PMR. Along with the other pain, neck/shoulder/right arm it was very difficult to get out of bed in the am. After diagnosis with OMR and GCA and 60 mg of prednisone, .pain gone. 7 months later I am finally down to 10 mg!! WhooHoo😊

Feb 7, 2019 · Is PMR Hereditary? in Polymyalgia Rheumatica (PMR)

Thank you, he is seeing two do tors tomorrow and asked that I go with him