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Posts (50)

3 days ago · Best Shower heads for MAC in MAC & Bronchiectasis

@migizii this was a very interesting abstract. It does seem our illness makes it difficult to determine treatment guidelines on a number of levels but this forum is so helpful in learning different aspects of how to approach one thing or another. Thanks!


@migizii. My pulmonologist recently prescribed “the vest” for me too as I have difficulty removing mucus. I am not quite old enough for Medicare so I don’t know if your aunt will qualify, but I went through RespirTech in St Paul, MN and they were very helpful navigating everything! Their phone number is 1-800-793-1261. I got this company recommendation from Mayo Clinic in Rochester, MN. I do not know what areas they work with around the country, tho.. good luck in your journey.

Tue, Apr 30 7:42pm · Best Shower heads for MAC in MAC & Bronchiectasis

@migizii I’m in Bemidji, MN and perhaps you doctor at Mayo in Rochester, too? I have not entered the shower head discussion as I am not convinced it to be anymore of a problem than anything else we run into in our life. We need to be careful, but I don’t want to be overly concerned. I checked with my pulmonologist and he wasn’t worried about hot tubs as long as they are cleaned regularly, so he thought that means excluding going in people’s home hot tubs as they are less likely to be cleaned as often as commercial settings. My recent scan showed indications of NTM infection but since I rarely produce sputum, I have to start wearing one of those vests and then he is going to order new sputum tests after there is some mucus production.

Thu, Apr 11 7:38pm · Advice about airway clearance devices in MAC & Bronchiectasis

@migizii I was prescribed the 7% saline solution immediately upon diagnosis and other than the shaky feeling people describe (perhaps from the albuterol I use before the saline), I do fine with the 7%. It seems we are all different inhow our body responds.

Sun, Apr 7 9:33pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

Thx for looking into this! Nice to know.

Fri, Apr 5 8:21pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

@migizii since I don’t have COPD, are there studies that show relationships between bronchiectasis and lung cancer?

Tue, Apr 2 8:12pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

I will definitely check into it! Thx for the info!😍

Mon, Apr 1 7:56pm · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

@migizii is this a conference? Is there a website I can check this out at? My son lives in Denver and I could possibly make a trip out out of it!