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Posts (35)

10 hours ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@migizii wow! Thanks for taking all this time to look into my question! Who is this doctor you speak of? How would I contact him? This is a wonderful group and I’m so glad to be a part of it!

11 hours ago · tips for travel in MAC & Bronchiectasis

Thanks so much!

1 day ago · tips for travel in MAC & Bronchiectasis

@migizii This sounds like a wonderful way to travel! I’ve tried a variety of ways but I really like the disposable nebulizer! May I ask, where do you get them?

1 day ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@migizii it was interesting reading your input about outcomes from your sputum test, cindyrue, asi have not heard anyone else discuss getting a “colonizer” type outcome……which is what happened to me with my only sputum tests, to date. Even though I asked my doctor what all this means and I seem to understand what it means, does colonizing cultures lead to disease?

Thu, Mar 14 8:25pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I did that but I live so far away from any of the sites according to the US map I saw that it didn’t let me go on.

Thu, Mar 14 8:11pm · health at diagnosis in MAC & Bronchiectasis

@migizii my diagnosis came about after getting sick and doctors not being able to find answers for about 9 months. I was diagnosed with mild bronchiectasis with follow up in 6 months and prescribed one to two times daily respiratory therapy. At my follow up appointment, it turned out the illness had jumped to my other lung and my doctor ordered sputum tests that revealed some bacteria that he said we would treat with twice daily respiratory therapy at this point. I don’t get sick or cough very often and rarely produce phlegm. However, like you, I feel like I never know what’s going to happen next. My next appointment is due in May or June, so I’ll see what’s changed (if anything) then.

Wed, Mar 13 8:32pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@migizii thanks for sending this…..I live too far away to consider even attempting to qualify but it would be interesting to hear what the study is looking for if someone decides to pursue it (I live in northern Minnesota).

Sat, Mar 9 8:05pm · Extreme fatigue in MAC & Bronchiectasis

This is really interesting to learn about the “brick wall!” I seem to fight fatigue off and on each day, but almost every afternoon somewhere between 2-4 until about 7pm, it’s like my body is not interested in doing anything but the absolute minimum and I have to really push through when I have things I have to do! I really like my doctor, but he never told me this is a symptom of this illness