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Posts (70)

5 hours ago · Osteoporosis of the spine and boniva in Bones, Joints & Muscles

I could not tolerate this medication due to my chronic migraines. However, I took the IV version without incidence. Ultimately, though, it didn’t help my osteoporosis and moved onto other medications. Good luck! I hope this works out for you!

6 days ago · Disinfecting nebulizer in MAC & Bronchiectasis

I clean with vinegar weekly soaking for 10 minutes, rinse with warm water, and air dry. Daily, I wash win soapy water, rinse in warm water, and air dry.

6 days ago · Prolia treatment for osteoporosis in Bones, Joints & Muscles

I spent the last six months recovering from three minor stress fractures in my foot (no fractures prior to this) and I have been on Prolia (off and on) for a few years, successfully. However, due to the lack of healing, my doctor is considering Tymlos because of its cost and my inability to tolerate Forteo (many years ago). Losing one’s independence for six months was very difficult and challenging; both physically and emotionally. As patients, I feel it’s really to our benefit to think about, research, and consider the pros and cons. I am willing to have a future, if possible, that provides me a level of independence. Thanks for listening everyone and good luck on all your journeys ❤️

Sun, Jul 7 7:14pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

I have bronchiectasis and have not contracted MAC as of yet. My occupation is a clinical social worker, but I have been working in a school setting for the past 20 years.

Thu, Jul 4 8:44pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

What do you say to your doctor you will take?

Tue, Jul 2 9:31pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

I do it that way….my pulmonologist says it’s fine as long as I can tolerate it.

Sat, Jun 29 8:26pm · bronchiectasis in MAC & Bronchiectasis

My pulmonologist has me doing twice daily nebulizing with albuterol and 7% saline solution along with an air clearance vest I wear to help clear mucus. I use to use an airway clearance (Aerobika) but it did not clear the mucus in my lungs and subsequent CAT scans kept showing increasing nodules and pockets of mucus. I have not ever experienced MAC/NTM infections, to date but some illnesses along the way that clear with a regular course of antibiotics. Everyone is different but I hope this helps.

Tue, Jun 25 7:34pm · Medication change from clarithromycin to azithromaycin in MAC & Bronchiectasis

I’m sorry to hear you are having so many problems right now. I do not have any advice but wanted to offer my thoughts and support through this time.