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Posts (4)

Thu, May 7 2:38pm · Liver transplant support group in Transplants

I just joined this support group and read your message. Just wanted to say I am wishing you the best, and I hope all goes well for you. Hope you have enough support here tin the US o get through whatever you need to get through. I am also waiting for liver transplant, I think worry must be a very normal response. But Mayo people really seem to know how to help us deal with whatever comes up.

Thu, May 7 2:34pm · Liver transplant support group in Transplants

Wow – two months post-transplant and you are back at work! That seems amazing to me. I am still waiting for transplant. I have an amazing caregiver, though she has recently had some heath problems of her own, like a lumpectomy for breast cancer. I am worried about being a burden to her after transplant. I think it takes an awful lot of calm and patience to be a caregiver, especially when dealing with someone on prednisone, like I am. Even I can't predict my reactions to fairly ordinary things sometimes.

Thu, May 7 2:20pm · Liver transplant support group in Transplants

This is the first time I have tried to get onto the online liver transplant support group. Not sure exactly where/how to connect. I live in Tucson, AZ. I experienced sudden liver failure two years ago; have been on the liver transplant list for about 1-1/2 years. Very tired of the prednisone now but nothing I can do.

Oct 19, 2018 · This and That and Talk - My Transplant in Transplants

I would like to hear more from people who have already had liver transplants – what's the best/worst of the long term experience? Had liver failure four months ago, now MELD 27 or so. Up and down a lot of days. Hard to predict energy levels. Just doing the liver transplant evaluation tests. Am wondering what life might be like after the proposed transplant.